Factors Influencing Burden of Child Caregivers of Children with Delayed Development

Main Article Content

Pimchanok Juntratip
Yunee Pongjaturawit
Nujjaree Chaimongkol

Abstract

Children with delayed development have less ability to look after themselves. Self-help thus
increases the burden for their caregivers. This predictive correlational research aimed to examine
factors predicting the burden of caregivers for children with delayed development. Convenience
sampling was used to recruit 76 caregivers of children with delayed development who brought their
children to receive service at the outpatient department of the Child Development and Behavior
Clinic of Rajanukul Institute, Bangkok. Data collection was carried out from May to June 2019. Research
instruments were a demographic questionnaire, the child self-care ability scale, the social support
questionnaire, and the burden of caregivers of children with delayed development questionnaire.
Cronbach’s alpha coeffcients were.85, .92 and .93, respectively. Data were analyzed with descriptive
statistics and multiple linear regression.
Results revealed that child self-care and social support accounted for 39.2% of variance
(adjusted R2 = .375, p < .001) in predicting the burden of caregivers of children with delayed
development. Self-care ability of children accounted for 23.7% (b = -.441, p < .001) of the variance
in caregiver burden, while social support accounted for 15.5% (b = -.396, p < .001).
To enhance the effectiveness of caring for children with delayed development, the fndings
suggest that nurses’ development of interventions to care for children with delayed development
should focus on the child’s self-care ability and social support for caregivers.

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บทความวิจัย

References

Barbaresi, W. J., Katusic, S. K. & Voigt, R.G. (2006). Autism: a review of the state of the science for pediatric primary health care clinicians. Arch Pediatric Adolescent Med. 160(11), 1167-75.

Chantarathip, P. (2010). Factors predicting stress in caring for mothers with autistic children. Thesis Master of Nursing Science, Mental Health and Psychiatric Nursing, Graduate School, Chiang Mai University. [In Thai]

Charatcharungkiat, N & Wacharasindhu, A. (2013). Quality of life among caregivers of children with autistic spectrum disorders and associated factors. J Psychiatr Assoc Thailand, 58(3), 233-244. [In Thai]

Chumjit, S. (2012). The effects of using empowerment programs on perceived efficacy in the care of children with attention deficit hyperactivity disorder. Bangkok: Yuwaprasart Waithayopathum Hospital. [In Thai]

Chumsri, S., Chaimongkol, N. & Sananreugsak, S. (2014). Effects of the child caregiver’s empowerment promoting program on ability and burden to care for children with cerebral palsy. The Journal of Faculty of Nursing Burapha University. 22(4), 35-46. [In Thai]

Cohen, J. (1992). A power primer. Psychological Bulletins, 112, 155-159.

Department of Mental Health. (2014). Statistical Report of the Department of Public Health, Ministry of Public Health. Can be accessed from https://www.ryt9.com/s/prg/1976334.

Hayeemasae, K., Sangsupawanitch, P., & Parinyasutinun, U. (2013). Comparative study on social support of caregivers of children with autism spectrum disorder and caregivers of typical development children in Songklanagarind hospital. The 4th Hatyai National and International Conference. Research for the development of Thai society (118-127). Songkla: Hatyai. [In Thai]

Khunrungsissombon, K. (2011). Quality of life of parents of slow development children. .Journal of Suanprung, 28(1), 5-16. [In Thai]

Lalana, P. (2007). Effectiveness of coping skill training program on depression in early adolescent. Nursing Science, 29(12), 39-47.

Lerthattasilp, T. (2007). Depression and caregiver burden among caregivers of children with autistic spectrum disorders at Thammasat University Hospital. Bangkok: Thammasat University Hospital. [In Thai]

Mai, T. L. A., Chaimongkol, N, Pongjaturawit, Y. (2015). Factors related to burden among caregiver of children with autism in Vietnam. Journal of Pediatric Nurse, 25(1), 46-56. [In Thai]

Obert, M. T. (1991). Appraisal of caregiving scale. Madison: University of Wisconsin.

Orapiriyakul, R., Benjakul, W. & Kwunkaew, S. (2014). Predictor of burden of care in primary family caregivers of children with autism in the west-coast southern Thailand. Journal of Faculty of Nursing, Prince of Songkla University, 34(3), 39-55. [In Thai]

Orem, D. E. (1991). Nursing: Concepts of practice (4th ed.). St. Louis, MO: C. V. Mosby.

Palapirom, R., Prasopkittikun, T. & Vichitsukon, K. (2010). Effects of an empowerment program on
mothers’ self-efficacy in the care of children with developmental delays. Journal of Nursing Mahidol University, 28(4), 68-75. [In Thai]

Photong, P., Chansuvarn, S., Khachat, S., & Sanchalad, S. (2014). The study of the health status of children with autism knowledge and stress of caregivers’ autistic children receiving services from the Special Education Center Region 5, Suphan Buri Province. Journal of Phraopokklao Nursing College, 25(2), 26-40. [In Thai]

Preechapongmit, K. (2012). Factor related to caregiving burden among caregivers of children with asthma. Nursing Journal, 39(4), 1-6. [In Thai]

Pushpalatha, R., & Shivakumara, K. (2015). Stress, burden and coping between caregivers of
cerebral palsy and autism children. The International Journal of Indian Psychology, 4(80), 108-114.

Schaefer, C., Coyne, J. C., & Lazarus, R. S. (1981). The health-related function of social support. Journal of Behavioral Medicine, 4, 381-405.

Shyam, R., Kavita & Govil, D. (2014). Stress and family burden in mothers of children with
disabilities. International Journal of Interdisciplinary and Multidisciplinary Studies, 1(4), 152-159.

Sigman, M., & McGovern, C. W. (2005). Improvement in cognitive and language skills from
preschool to adolescence in autism. Journal of Autism Developmental Disorders, 35(1), 15-23.

Srivongpanich, N. (2013). Children with developmental disabilities. Can be accessed from
https://th.rajanukul.go.th/preview-4007.html [In Thai]

Toomnoi, N., Chaimongkol, N. & Phaktoop, M. (2008). Impact of support
from society and family, and family coping behavior on burden of families caring
for exceptional children. Journal of Faculty of Nursing, Burapha University, 16(4), 39-49. [In Thai]

Viriyaprasart, L. (2007). Relationship between some fundamental factors, burden and
general well-being in caregivers of cerebral palsy children who attained at out patient
service department of Rajanukul Institute. Rajanukul institute Journal. 22(2), 95-116.
[In Thai]

Wacharasin, C., Pakthop, M. & Sananreangsak, S. (2006). The development of empower the power of relatives who care for chronically ill children: a case study of thalassemia. Chonburi: Faculty of Nursing, Burapha University. [In Thai]

World Health Organization. (2012). Developmental difficulties in early childhood:
Prevention, early identification, assessment and intervention in low and middle
income countries a review. Turkey Country Office and CEECIS Regional Office.

Yuwaprasart Vaithayopathum Child Psychiatric Hospital (2018). Statistical data, outpatient,
older. Retrieved fromhttp://ycap.go.th/th/index.php/about-us/stat-th/
2018-09-13-03-18-53. [In Thai]