Effectiveness of Thai Integrated Care Program for Older Adults with Dementia in the Community: A Quasi-experimental Study
Keywords:
Caregiver, Community, Dementia, Integrated care program, Older adultsAbstract
As the number of older adults with dementia is growing worldwide, a variety of services are required to maintain their independent living in the community. The purpose of this quasi-experimental study was to examine the effectiveness of the Thai Integrated Care Program for Dementia. Two health promoting hospitals in the North East region of Thailand were purposively selected, and then randomly assigned into the experiment or comparison group. A total of 20 older adults with dementia from outpatients’ clinics in each hospital and their caregivers were recruited. The intervention group received a 3-month program in addition to usual care, but the comparison group received only usual care. Instruments used to collect the data were the Mini Mental State Examination-Thai version 2002, Basic Activities of Daily Living, Chula Activity of Daily Living Index, Quality of Life-Alzheimer’s Disease, Neuropsychiatric Inventory Questionnaire, and the Zarit Burden Interview. Data was analyzed with paired t-test and Wilcoxon signed rank test.
Results revealed that at post-intervention the quality of life of those in the intervention group remained, but in the comparison group this was less than before the intervention. Caregiver burden from the intervention group was significantly lesser than before the intervention and the comparison group. However, there were no significant differences in cognitive and physical functions, and the behavioral and psychological symptoms of dementia between the two groups. We conclude that this program has good potential to maintain quality of life and reduce caregiver burden. Nurse administrators in Thailand need to develop a system to have a nurse case manager or an advanced practice nurse manage the integrative care collaboration with other health professionals to improve the outcomes of dementia management.
References
Prince M, Bryce R, Albanese E, Wimo A, Ribeiro W, Ferri CP. The global prevalence of dementia: a systematic review and meta-analysis. Alzheimer’s Dementia; J Alzheimer’s Assoc. 2013; 9: 63–75.
World Alzheimer Report 2018. The state of the art of dementia research: new frontiers. [Internet]. 2018 [cited 2020 March 20]. Available from: https://www.alzint. org/u/WorldAlzheimerReport2018.pdf
Foundation of Thai Gerontology Research and Development Institute (TGRI). Situation of the Thai elderly in 2016. [Internet]. 2016 [cited 2021 April 26]. Available from: http://www.dop.go.th/download/knowledge/th15123 67202-108_0.pdf (in Thai).
Di Lorito C, Pollock K, Harwood R, das Nair R, Logan P, Goldberg S, et al. A scoping review of behaviour change theories in adults without dementia to adapt and develop the ‘PHYT in dementia,’ a model promoting physical activity in people with dementia. Maturitas. 2019; 121: 101–13. doi: 10.1016/j.maturitas.2019.01.008. Epub 2019 Jan 23. PMID: 30686623.
Christiansen L, Berglund JS, Lindberg C, Anderberg P, Skär L. Health-related quality of life and related factors among a sample of older people with cognitive impairment. Nurs Open. 2019 Mar 19; 6(3): 849-59. doi: 10.1002/nop2. 265. PMID: 31367408; PMCID: PMC6650697.
Kawaharada R, Sugimoto T, Matsuda N, Tsuboi Y, Sakurai, Ono R. Impact of loss of independence in basic activities of daily living on caregiver burden in patients with Alzheimer’s disease: a retrospective cohort study. Geriatr Gerontol Int. 2019; 1243-47. doi.org/10.1111/ggi.13803.
Toot S, Swinson T, Devine M, Challis D, Orrell M. Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis. Intern Psychogeriatrics. Cambridge University Press; 2017; 29 (2): 195–208. doi:10.1017/S1041610216001654.
World Health Organization. Integrated care models: an overview. [Internet]. 2016 October [cited 2021 April 12]. Available from: https://www.euro.who.int/__data/assets/ pdf file /0005/ 322475/Integrated-care-models-overview.pdf
Briggs AM, Valentijn PP, Jotheeswaran A, Thiyagarajan JA, Carvalho IA. Elements of integrated care approaches for older people: a review of reviews. BMJ Open. 2018; 8: e021194. doi:10.1136/bmjopen-2017-021194.
Chien WT, Lee IYM. Randomized controlled trial of a dementia care programme for families of home-resided older people with dementia. J Adv Nurs. 2010; 67(4): 774-87.
Wang LQ, Chien WT, Lee IYM. An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China. Contemp Nurse. 2012; 40(2): 210-24.
Easom LR, Alston G, Coleman R. A rural community translation of a dementia caregiving intervention. Online J Rural Nurs Health Care. 2011; 13(1): 66-91.
Low LF, Fletcher J. Models of home care services for persons with dementia: a narrative review. Int Psychogeriatr. 2015; 27(10): 1593–1600.
Tanaka S, Yamagami T, Yamaguchi H. Effects of a group-based physical and cognitive intervention on social activity and quality of life for elderly people with dementia in a geriatric health service facility: a quasi-randomised controlled trial. Psychogeriatrics. 2021 Jan; 21(1): 71-79. doi: 10.1111/psyg.12627. Epub 2020 Nov 2. PMID: 33140499.
Pankong O, Pothiban L, Sucamvong K, Khampolsiri T. A randomized controlled trial of enhancing positive aspects of caregiving in Thai dementia caregivers for dementia. Pacific Rim Int J of Nurs Res. 2018; 22:(2), 131-43.
World Health Organization. First WHO ministerial conference on global action against dementia. [Internet] 2015. [cited 2015 Jun 25]. Available from : https: // who.int/mediacentre/ events/meetings/2015/global-action-against-dementia/en/
Prasat Neurological Institute, Department of Medicine. Clinical practice guideline: dementia. Bangkok: Prasat Neurological Institute; 2014.
Sipapark S, Chuengsatiansup K, Tengrang K. The effects and caregiving burdens of older people in long-term care based on Thai culture. Nonthaburi: Health Systems Research Institute; 2014.
Ha NHL, Yap Lin Kiat P, Nicholas SO, Chan I, Wee SL. Evaluating the outcomes of a hospital-to-community model of integrated care for dementia. Dement Geriatr Cog Disord. 2020; 49(6): 598-603. doi: 10.1159/000512290. Epub 2020 Dec 3. PMID: 33271552.
Kodner D. All together now: a conceptual exploration of integrated care. Healthcare Quart. 2009;13: 6-15. doi:10.12927/hcq.2009.21091.
Minkman MMN. Developing integrated care toward a development model for integrated care. Int J Integr Care. [Internet]. 2012 Oct 12 [cited 2014 July 2]; 12: e197. Available from: http://www.ijjc.org
Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, NJ: Erlbaum Associates Inc, 1988.
Ministry of Public Health. Barthel Activities of Daily Living: ADL [Internet]. 2012. [cited 2014 July 2]. Available from: http://www.udo.moph.go.th
Jitapunkul S., Kamolratanakul P, Ebrahim, S. The meaning of activities of daily living in a Thai elderly population: development of a new index. Age Aging. 1994; 3(2): 97-101.
Buasi N, Permsuwan U. Validation of the Thai QOL-AD version in Alzheimer’s patients and caregivers. Australas Med J. 2014; Jun 30; 7(6): 251–9. doi: 10.4066/AMJ.2014.2078. PMID: 25031647; PMCID: PMC4082250.
Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging.1999; 5(1): 21-32.
Toonsiri C, Sunsern R, Lawang W. Development of the burden interview for caregivers of patients with chronic illness. J Nurs Educ. 2011; 4(1): 62-75 (in Thai).
Kim HH. Effects of experience-based group therapy on cognitive and physical functions and psychological symptoms of elderly people with mild dementia. J Phys Ther Sci. 2015; 27(7): 2069-71.
Chew J, Chong MS, Fong YL, Tay L. Outcomes of a multimodal cognitive and physical rehabilitation program for persons with mild dementia and their caregivers: a goal-oriented approach. Clin Interv Aging. 2015; 10: 1687-94.
Holthoff VA, Marschner K, Scharf M, Steding J, Meyer S, Koch R, et al. Effects of physical activity training in patients with Alzheimer’s Dementia: results of a pilot RCT study. PLoS One. 2015; doi: 10.1371.2015.
Blair A, Bateman C, Anderson K. “They take a lot of pressure off us”: volunteers reducing staff and family care burden and contributing to quality of care for older patients with cognitive impairment in rural hospitals. Austra J Ageing. 2019; 38(2): 34-45.
Berwig M, Heinrich S, Spahlholz J, Hallensleben N, Brähler E, Gertz HJ. Individualized support for informal caregivers of people with dementia effectiveness of the German adaptation of REACH II. BMC Geriatrics. 2017; 17: 286. doi:10.1186/s12877-017-0678-y.
Piersol CV, Canton K, Connor SE, Giller I, Lipman S, Sager S. Effectiveness of interventions for caregivers of people with Alzheimer’s disease and related major neurocognitive disorders: a systematic review. Am J Occup Ther. 2017; 71. 7105180020. doi.org/10.5014/ajot.2017.027581.
Komjakrapan P, Karuncherernpanit S. Experiences of communicating with older adults with Alzheimer’s disease: a phenomenological study of family caregivers. Pacific Rim Int J Nurs Res. 2021; 25(1): 75-86.
Tai SY, Hsu CL, Huang SW, Ma TC, Hsieh WC, Yang YH. Effects of multiple training modalities in patients with Alzheimer’s disease: a pilot study. Neuropsychiatr Dis Treat. 2016; 12: 2843–49.
Sampaio A, Marques-Aleixo I, Seabra A, Mota J, Carvalho J. Physical exercise for individuals with dementia: potential benefits perceived by formal caregivers. BMC Geriatrics. 2021; 21(6):1-14. doi.org/10.1186/s12877-020- 01938-5.
Schiffczyk C, Romero B, Jonas C, Lahmeyer C, Müller F, Riepe MW. Efficacy of short-term inpatient rehabilitation for dementia patients and caregivers: prospective cohort study. Dement Geriatr Cogn Disord. 2013; 35: 300-12.
Orrell M, Yates L, Leung P, Kang S, Hoare Z, Whitaker C, et al. The impact of individual cognitive stimulation therapy (iCST) on cognition, quality of life, caregiver health, and family relationshipsin dementia: a randomised controlled trial. PLoS Med. 2017; 14(3): doi.org/ 10.1371/journal. pmed.1002269.
Kim D. The effects of a recollection-based occupational therapy program of Alzheimer’s disease: a randomized controlled trial. Occup Therapy Intern. 2020; August: 1-8. doi.org/ 10.1155/2020/6305727.
Sampath P. A systematic review of the effectiveness of interventions for person living with dementia based in the home or community. Perspectives. 2015; 38(2): 6-19.
Downloads
Published
How to Cite
Issue
Section
License
Copyright: The Pacific Rim International Journal of Nursing Research, Thailand Nursing & Midwifery Council has exclusive rights to publish, reproduce and distribute the manuscript and all contents therein.