Factors Explaining Quality of Life among Family Caregivers of People with Stroke in Myanmar: A Cross-sectional Study

Authors

  • May Sein Ba RN, PhD (Candidate), Doctor of Philosophy Program in Nursing (International Program), Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital and Faculty of Nursing, Mahidol University, Thailand and Lecturer, Nursing Training School (East, Yangon), Yangon.
  • Supreeda Monkong RN, PhD (Nursing), Associate Professor, Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Thailand.
  • Sirirat Leelacharas RN, PhD (Nursing), Assistant Professor, Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Thailand.
  • Pratana Satitvipawee PhD (Public Health), Associate Professor, Department of Biostatistics, Faculty of Public Health, Mahidol University, Thailand.

Keywords:

Burden, Caregivers, Myanmar, Quality of life, Stroke, Telenursing

Abstract

           Advanced health care systems have led to increased survival among people with stroke; however, the disability level remains high. Caring for the people with stroke and consequent disabling conditions places an undue strain on their caregivers, which may, in turn, reduce their quality of life, subsequently affecting the quality of care. Thus, understanding the factors explaining the quality of life is needed to design interventions to improve the quality of life among caregivers. This correlational study was conducted among 303 family caregivers of people with stroke three months after being discharged from hospital to home from three general hospitals in Myanmar. Six validated instruments were used to collect caregiver data: a demographic questionnaire, the Barthel Index, the Zarit Burden Interview, The Brief COPE, the Multidimensional Scale of Perceived Social Support and the World Health Organization Quality of Life –Brief (WHOQOL-BREF). Data were analyzed using descriptive statistics and hierarchical regression analysis.
           Results indicated that educational and occupational status of caregivers, average family income per month, numbers of caregiving hours per day, functional status of people with stroke, the burden of caregivers, and perceived social support were significantly accounted for 84% of the variance to the quality of life, which is very high. The burden was the most significant factor in explaining the quality of life, followed by education and perceived social support. Nurses need to apply innovative technology to provide continuous care at home, especially in the first three months, to reduce caregivers’ burden. Also, the Myanmar government needs to strengthen health insurance systems to reduce the financial burden, which significantly affects the quality of life of the caregivers.

Author Biography

May Sein Ba, RN, PhD (Candidate), Doctor of Philosophy Program in Nursing (International Program), Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital and Faculty of Nursing, Mahidol University, Thailand and Lecturer, Nursing Training School (East, Yangon), Yangon.



References

Wajngarten M, Silva GS. Hypertension and Stroke: Update on treatment. Eur Cardiol Rev. 2019; 14(2):111-5. doi:org/10.15420/ecr.2019.11.1

Farahani MA, Bahloli S, JamshidiOrak R, Ghaffari F. Investigating the needs of family caregivers of older stroke patients: A longitudinal study in Iran. BMC Geriatr. 2020;20(1), 313. doi: 10.1186/s12877-020-01670-0

Cohen JW, Ivanova TD, Brouwer B, Miller KJ, Bryant D, Garland SJ. Do performance measures of strength, balance, and mobility predict quality of life and community reintegration after stroke? Arch Phys Med Rehabil. 2018;99(4):713-9. doi:10.1016/j.apmr.2017.12.007

Okoye EC, Okoro SC, Akosile CO, Onwuakagba IU, Ihegihu EY, Ihegihu CC. Informal caregivers’ well‐being and care recipients’ quality of life and community reintegration–findings from a stroke survivor sample. Scand J Caring Sci. 2019; 33(3):641-50. doi.10.1111/scs.12657

Moura A, Teixeira F, Amorim M, Henriques A, Nogueira C, Alves E. A scoping review on studies about the quality of life of informal caregivers of stroke survivors. Qual Life Res. 2021. doi: 10.1007/s 11136-021-02988-x

Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro MP, Cabañero-Martínez MJ. Level of burden and health-related quality of life in caregivers of palliative care patients. Int. J. Environ. Res. Public Health. 2019; 16(23):4806. doi:10.3390/ijerph16234806

Naing MZ, May SY, Aung MH. Caregiver burden from caring for dependent elderly in Yangon, The Republic of the Union of Myanmar. Makara J. Health Res. 2020; 24(1):13-20. doi: 10.7454/msk.v24i1.1067

Win H, Soe TZ, Chan Y, Thu MM, Kyaw MM. The burden of caregiving on caregivers of stroke patients attending the outpatient follow-up clinic of Neuro Medical Unit, Yangon General Hospital. Myanmar Health Sciences Research Journal. 2011; 23(1),15-20.

Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist. 1990; 30(5):583-94. doi:10.1093/geront/30.5.583

World Health Organization. WHOQOL-BREF: Introduction, administration, scoring and generic version of the assessment: Field trial version, 1996. World Health Organization; 1996.

Judge KS, Menne HL, Whitlatch CJ. Stress process model for individuals with dementia. Gerontologist. 2010; 50(3):294-302. doi: 10.1093/geront/gnp162

Kongkar R, Pinyopasakul W, Pongthavornkamol K, Dajpratham P, Orathai P. The determinants of quality of life in Thai family caregivers of stroke survivors. Siriraj Med J. 2019; 71(4):290-6. Available from: http://orcid.org/0000-0001-9318-6809. doi: 10.33192/Smj.2019.44

Pucciarelli G, Ausili D, Galbussera AA, Rebora P, Savini S, Simeone S, Alvaro R, Vellone E. Quality of life, anxiety, depression and burden among stroke caregivers: A longitudinal, observational multicentre study. J Adv Nurs. 2018; 74(8):1875-87. doi:10.1111/jan.13695

Alquwez N, Alshahrani AM. Influence of spiritual coping and social support on the mental health and quality of life of the Saudi informal caregivers of patients with stroke. J Relig Health. 2021; 60(2):787-803. doi: 10.1007/s10943-020-01081-w

Çelik A, Kara B. The relationship between the stroke survivors’ functional status and their informal caregivers’ burden and quality of life. AIMS Med Sci. 2019; 6(1):115-27. doi:10.3934/medsci.2019.1.115

Jia Y, Shi J, Sznajder KK, Yang F, Cui C, Zhang W, Yang X. Positive effects of resilience and self‐efficacy on World Health Organization Quality of Life Instrument score among caregivers of stroke inpatients in China. Psychogeriatrics. 2021; 21(1):89-99. doi: 10.1111/psyg.12635

García FE, Barraza-Peña CG, Wlodarczyk A, Alvear-Carrasco M, Reyes-Reyes A. Psychometric properties of the Brief-COPE for the evaluation of coping strategies in the Chilean population. Psicol Reflex Crit. 2018; 31: 22 doi.10.1186/s41155-018-0102-3

Kumar R, Kaur S, Reddemma K. Predictors of quality of life and its impact on coping styles in Stroke Caregivers. J Neurol Disord. 2017; 5(336). doi: 10.4172/2329-6895.1000336

Rodríguez-Pérez M, Abreu-Sánchez A, Rojas-Ocaña MJ, del-Pino-Casado R. Coping strategies and quality of life in caregivers of dependent elderly relatives. Health Qual Life Outcomes. 2017;15(1):1-8. doi: 10.1186/s12955-017-0634-8

Caro CC, Costa JD, Da Cruz DM. Burden and quality of life of family caregivers of stroke patients. Occup Ther Health Care. 2018; 32(2):154-71. doi: 10.1080/07380577.2018.1449046

Brooke P, Bullock R. Validation of a 6 item cognitive impairment test with a view to primary care usage. Int. J. Geriatr. Psychiatry. 1999; 14(11):936-40. doi: 10.1002/(SICI)1099-1166(199911)14:11<936::AIDGPS39>3.0.CO;2-1

Chen Y, Lu J, Wong KS, Mok VC, Ungvari GS, Tang WK. Health-related quality of life in the family caregivers of stroke survivors. Int J Rehabil Res. 2010; 33(3):232-7. doi: 10.1097/MRR.0b013e328338b04b

Morimoto T, Schreiner AS, Asano H. Caregiver burden and health‐related quality of life among Japanese stroke caregivers. Age Ageing. 2003; 32(2):218-23.

World Health Organization. Process of translation and adaptation of instruments. nd [ cited 2018 March 7].Available from: http://www.who.int/substance_abuse/research_tools/translation/en/

Mahoney FI, Barthel DW. Functional evaluation: The Barthel Index: A simple index of independence useful in scoring improvement in the rehabilitation of the chronically ill. Md State Med J. 1965; 14: 61-5.

Busting N, Tipayamongkholgul M, Ratanakorn D, Suwannapong N, Bundhamcharoen K. Social support, functional outcome and

quality of life among stroke survivors in an urban area. J Pac Rim Psychol.. 2019;13: e4. doi.10.1017/ prp.2019.2

Zarit SH, Zarit JM. Instructions for the burden interview. University Park: Pennsylvania State University; 1987. Available from: https://scholar.google.com/scholar.

Carver CS. You want to measure coping but your protocol’ too long: Consider the brief cope. Int. J. Behav. Med. 1997; 4 (1):92-100.

Zimet GD, Dahlem NW, Zimet SG, Farley GK. The multidimensional scale of perceived social support. J Pers Assess. 1988; 52(1):30-41.

Tsai YH, Lou MF, Feng TH, Chu TL, Chen YJ, Liu HE. Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurol. 2018; 18(1):1-9. doi:10.1186/s12883-018-1057-9

Teerawichitchainan B, Knodel J. Long-term care needs in the context of poverty and population aging: The case of older persons in Myanmar. J. Cross-Cult. Gerontol. 2018;33(2):143-62. doi: 10.1007/s10823-017-9336-2

Badaru U, Ogwumike O, Adenivi A, Nelson E. Determinants of caregiving burden and quality of life of informal caregivers of African stroke survivors: literature review. Int J Disabil Hum Dev. 2017; 16 (3):249-258. htps://doi.org/10.1515/ijdhd-2016-0041

Zin PE, Saw YM, Saw TN, Cho SM, Hlaing SS, Noe MT, Kariya T, Yamamoto E, Lwin KT, Win HH, Hamajima N. Assessment of quality of life among elderly in urban and periurban areas, Yangon Region, Myanmar. PLoS One. 2020;15(10):e0241211. doi: 10.1371/journal.pone.0241211

Karakurt P, Unsal A, Tanriverdi D. Evaluation of care burden and quality of life of caregivers of patients with stroke. Int. J. Caring Sci. 2018; 1(1):529-42. Available from: http://internationaljournalofcaringsciences.org//docs/61_tarniverdi_original_11_1.pdf

Venketasubramanian N, Khine YM, Ohnmar O, Khin MP, Win MT. Burden of stroke in Myanmar. Cerebrovasc Dis Extra. 2021; 11(2):49-51. doi: 10.1159/000515123

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Published

2022-03-05

How to Cite

1.
May Sein Ba, Monkong S, Leelacharas S, Satitvipawee P. Factors Explaining Quality of Life among Family Caregivers of People with Stroke in Myanmar: A Cross-sectional Study. PRIJNR [Internet]. 2022 Mar. 5 [cited 2024 Dec. 19];26(2):355-69. Available from: https://he02.tci-thaijo.org/index.php/PRIJNR/article/view/256523

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