The Burden of Caregivers due to Stroke Patients Living at Home: Integrative Review

Main Article Content

Piyarat Chonsin
Puangpaka Kongvattananon
Chomchuen Somprasert


An integrative review is an internationally accepted approach that is often used foridentifying, analyzing, reporting, interpreting and drawing the theme conclusions frommultiple studies. This study aimed to synthesize perspectives of the burden upon strokecaregivers. Data were collected from international databases. Qualitative studiesreported the perceptions of the caregivers in caring for persons who had suffered a stroke.The search was limited to the English language; journal articles; age groups includedall adults; quantitative studies or irrelevant articles were excluded. Eight articles relevantto the objective were included. The identified data were extracted from the results in theeight relevant sections and then ATLAS.ti 8 Software was used for the analysis of thequalitative studies. The results of this study were synthesized into three main themes:(1) the level of the caregiver burden; (2) the environmental factors of the burden, and(3) the related illnesses from the burden. Conclusion: The integrative review of qualitativestudies about the burden endured by stroke caregivers arranged unique insights into thestroke caregiver perceptions and extracted their expressions of behavior into three themesabout the burden. These findings could serve as a basis for creating a program to reducethe burden of stroke caregivers.

Article Details

How to Cite
Chonsin P, Kongvattananon P, Somprasert C. The Burden of Caregivers due to Stroke Patients Living at Home: Integrative Review. BKK Med J [Internet]. 2017 Sep. 20 [cited 2024 Apr. 13];13(2):81. Available from:
Case Report


1. Chou KR. Caregiver burden: a concept analysis. J Pediatr Nurs 2000;15(6):398-407.
2. Oldenkamp M, Hagedoorn M, Slaets J, et al. Subjective burden among spousal and adult-child informal caregivers of older adults: results from a longitudinal cohort study. BMC geriatr 2016;16(1):208.
3. Cecil R, Thompson K, Parahoo K, et al. Towards an understanding of the lives of families affected by stroke: a qualitative study of home carers. J Adv Nurs 2013;69(8):1761- 70.
4. Rice VH. Handbook of stress, coping, and health: implications of nursing research, theory, and practice. Thousand Oaks, Califonia: SAGE; 2000.
5. Tellier M, Rochette A, Lefebvre H. Impact of mild stroke on the quality of life of spouses. Int J Rehabil Res 2011;34(3): 209-14.
6. McCarthy MJ, Bauer E. In Sickness and in Health: Couples Coping with Stroke across the Life Span. Health&Social Work 2015;40(3):e92-e100.
7. Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 2008;8:45
8. Whittemore R, Knaf K. The integrative review: updated methodology. Journal of Advanced Nursing. 2005;52(5): 546-53.
9. Park M, Butcher HK, Maas ML. A thematic analysis of Korean family caregivers’ experiences in making the decision to place a family member with dementia in a long term care facility. Res Nurs Health 2004;27(5):345-56.
10. Lazarus RS, Folkman S. Stress. Appraisal and Coping. New York1984.
11. Bastawrous M, Gignac MA, Kapral MK, et al. Adult daughters providing post-stroke care to a parent: a qualitative study of the impact that role overload has on lifestyle, participation and family relationships. Clin Rehabil 2015;29(6):592-600.
12. Cao V, Chung C, Ferreira A, et al. Changes in activities of wives caring for their husbands following stroke. Physiother Can 2010;62(1):35-43.
13. Green TL, King KM. Experiences of male patients and wifecaregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. Int J Nurs Stud 2009;46(9):1194-200.
14. Pierce LL, Thompson TL, Govoni AL, et al. Caregivers’ incongruence: emotional strain in caring for persons with stroke. Rehabil Nurs 2012;37(5):258-66.
15. White CL, Korner-Bitensky N, Rodrigue N, et al. Barriers and facilitators to caring for individuals with stroke in the community: the family’s experience. Can J Neurosci Nurs 2007;29(2):5-12.
16. Selye H. The stress of life. New York: McGraw-Hill; 1956.
17. Selye H. Stress in health and disease: Butterworth-Heinemann; 2013.
18. Fink G. Selye’s general adaptation syndrome: stressinduced gastro-duodenal ulceration and inflammatory bowel disease. The Journal of endocrinology. 2017;232(3):F1-F5.
19. Jackson M. Open Access Monographs and Book Chapters Funded by Wellcome Trust Evaluating the Role of Hans Selye in the Modern History of Stress. In: Cantor D, Ramsden E, editors. Stress, Shock, and Adaptation in the Twentieth Century. Rochester (NY): University of Rochester Press Copyright 2014 by the Editors and Contributors.; 2014.
20. Boyd MA. Stress and mental health. Psychiatric nursing contemporary practice. New York: Wolters kluwer; 2015.