Integrative Review for a Family-centered Care Intervention to Promote Family Functioning in Families Living with Children with Chronic Illness
Article Sidebar
Main Article Content
Abstract
This integrative review aimed to synthesize a family-centered care intervention to promote family functioning in families living with children with chronic illness. This review was conducted regarding family living with children with chronic illness, and CINAHL, PsycINFO, PubMed, and Scopus databases were searched from January 1, 2011 until December 31, 2021. Eight studies involving participants were included. The following six major categories were identified as the interventions focusing on several components: communication skill development, problemsolving skill development, promoting caregiver knowledge, supporting and cognitive components, spirituality, and parent-child relationships. This integrative review was designed to provide insightful understanding of family-centered care interventions to promote family functioning in families living with children with chronic illness. According to the findings, the family empowerment program is an interesting program that can improve almost all components under family functioning. Moreover, spirituality is widely applied as the strategy promoting family functioning in the area studied. Therefore, developing a program based on the concept of family empowerment and spirituality were recommended in this study to help families living with children with chronic illness maintain family functioning.
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
References
Adanir AS, Taskiran G, Fettahoglu EC, et al. Psychopathology and Family Functioning in Adolescents with Beta Thalassemia. Adolesc Psychiatry 2017;7(1):4-12. doi:10.2174/2210676606666161115143217.
Wacharasin C, Phaktoop M, Sananreangsak S. A family empowerment program for families having children with thalassemia, Thailand. Nurs Health Sci 2015;17(3):387-94. doi:10.1111/nhs.12201.
Herzer M, Godiwala N, Hommel KA, et al. Family functioning in the context of pediatric chronic conditions. J Dev Behav Pediatr 2010;31(1):26-34. doi:10.1097/DBP.0b013e3181c7226b
Keshvari M, Ebrahimi A, Abedi H. Relation between Children’s Well-Being and Family Function in Children with Thalassemia Major in Isfahan in 2013. Glob J Health Sci 2016;8(12):170-7. doi:10.5539/gjhs. v8n12p170
Yunak R, Chontawan R, Sripichayakan K, et al. Living with the differences: Thai adolescents’ experiences of living with transfusion-dependent Thalassemia. Thai J Nurs Res 2009;13(4):318-31.
Page MJ, McKenzie JE, Bossuyt PM, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ 2021;372:n71. doi: 10.1136/bmj.n71
Santos WM, Secoli SR, Püschel VAA. The Joanna Briggs Institute approach for systematic reviews. Rev Latino-Am Enfermagem 2018;26:e3074. doi:10.1590/1518-8345.2885.3074
Yensen J. (2013). PICO Search Strategies. Online J Nurs Inform 2013;17(3). Available at http://ojni.org/issues/?p=2860
Najafi K, Borhani F, Rabari D, et al. The Effect of Family-centered Empowerment Model on the Mothers’ Knowledge and Attitudes about Thalassemia Disorder. Iran J Pediatr Hematol Oncol 2011;1(3):98-103.
Borjalilu S, Shahidi S, Mazaheri MA, et al. Spiritual Care Training for Mothers of Children with Cancer: Effects on Quality of Care and Mental Health of caregivers. Asian Pac J Cancer Prev 2016;17(2):545-52.
Yeh HY, Ma WF, Huang JL, et al. Evaluating the effectiveness of a family empowerment program on family function and pulmonary function of children with asthma: A randomized control trial. Int J Nurs Stud 2016;60:133-44.
Mapiloon P, Ratchanagul P, Muensa W. ( 2016). The effect of the program to develop capability of self-care of school-age children with thalassemia and capability of family caregiver for taking care of their child to self-care behavior of school-age children with thalassemia. Journal of Nursing Science 2016;31(2):52-68.
Zare N, Ravanipour M, Bahreini M, et al. Effect of a self-management empowerment program on anger and social isolation of mothers of children with cerebral palsy: A randomized controlled clinical trial. Evid Based Care J 2017;7(3):35-44. doi:10.22038/ebcj.2017.26072.1598
Nagar SA, Lawend JA, Elbilgahy AA. Empowering Mothers Caring for their Children with Chronic Kidney Disease through Engagement and Education. IOSR-JNHS 2020;9(4):12-9.
Lee S, Edwards K, McMurtry CM. A cognitive-behavioral group intervention for parents of youth with chronic pain: Development, feasibility, and preliminary effectiveness. Clin Pract Pediatr Psychol 2021;9(2):145- 55. doi:10.1037/cpp0000385
Gibson GH. The process of empowerment in mother of chronically ill children. J Adv Nurs 1995;2:1201-10.
Epstein NB, Bishop DS. Levin S. The McMaster Model of Family Functioning. J Marital Fam Therapy 1978;4(4):19-31.
Noughabi FA, Iranpoor D, Yousefi H, et al. Effect of instructing care program through group discussion on the quality of life of the parents of the children afflicted with leukemia. Glob J Health Sci 2016;8(5):197-204. doi: 10.5539/gjhs.v8n5p197.
Plumridge G, Metcalfe A, Coad J, et al. The role of support groups in facilitating families in coping with a genetic condition and in discussion of genetic risk information. Health Expect 2012;15(3):255-66. doi:10.1111/j.1369-7625.2011.00663.x
Yuennan C. The nature of family-centered care in Thailand: A case study. A thesis submitted in fulfilment of the requirements for the degree of Doctor of Philosophy in the School of Health Sciences, Faculty of Medicine and Health Sciences, the University of East Anglia.2015 (Accessed January 10, 2022, at https://ueaeprints.uea.ac.uk/id/eprint/59197/1/Choosak_Yuennan_Thesis_Final.pdf ).
Bonab BG, Koohsar AAH. Reliance on God as a core construct of Islamic psychology. Procedia Soc Behav Sci 2011:30(1):216-20. doi:10.1016/j.sbspro.2011.10.043
Mousavi FS, Bonab BG, Karimi JP. The role of trusting in god in predicting mental health of Tehran university students. Health Spirituality Med Ethics 2014;1(4):2-9.
Gaudette H, Jankowski KR. Spiritual coping and anxiety in palliative care patients: A pilot study. J Health Care Chaplaincy 2013;19(4):131-9. doi:10.1080/08854726.2013.823785
Efe E, Isler A, Sarvan S, et al. Complementary and alternative medicine use in children with thalassaemia. J Clin Nurs 2013;22(5-6):760-9. doi: 10.1111/j.1365-2702.2012.04210.x
Nabors LA, Kichler JC, Brassell A, et al. Factors related to caregiver state anxiety and coping with a child's chronic illness. Fam Syst Health 2013;31(2):171-80. doi:10.1037/a0031240
Anum J, Dasti R. Caregiver Burden, Spirituality, and Psychological Well- Being of Parents Having Children with Thalassemia. J Relig Health 2016;55(3):941-55. doi:10.1007/s10943-015-0127-1
Ali S, Sabih F, Jehan S, et al. Psychological distress and coping Strategies among parents of beta-Thalassemia major patients. International Conference on Clean and Green Energy 2012;27:124-8. Retrieved from http://www.etlibrary.org/?m=fbook&a=details&aid=5151
Heo GJ, Koeske G. The Role of Religious Coping and Race in Alzheimer’s Disease Caregiving. J Appl Gerontol 2013;32(5):582-604. doi:10.1177/0733464811433484hological
Ivtzan I, Chan CP, Gardner HE, et al. Linking religion and spirituality with psychological well-being: Examining self-actualization, meaning in life, and personal growth initiative. J Relig Health 2013; 52(3):915-29. doi: 10.1007/s10943-011-9540-2
National Statistic Office. The Economic and Social Survey of The House Crutcher BE. 2555. Bangkok: National Statistic Office.2013 (Accessed December 2, 2021, at http://web.nso.go.th/en/stat_theme_eco.htm )
Zaheer Z, Wazir S, Hameed B, et al. Psychological burden in β-thalassemia affected families. J Postgrad Med Inst 2015;29(4):260-3.
Golfenshtein N, Srulovici E, Deatrick JA. Interventions for reducing parenting stress in families with pediatric conditions: An Integrative review. J Fam Nurs 2016;22(4):460-92. doi:10.1177/1074840716676083
Trachtenberg FL, Gerstenberger E, Xu Y, et al. Relationship among chelator adherence, change in chelators, and quality of life in thalassemia. Qual Life Res 2014; 23(8):2277-88. doi: 10.1007/s11136-014-0671-2