Factors Predicting Quality of Life in Caregivers of Children with Biliary Atresia
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Abstract
Purpose: This study aimed to examine the predictive power of children’s age, caregiver stress, caregiver burden, and social support on quality of life in caregivers of children with biliary atresia.
Design: The predictive correlational study design.
Methods: The study sample included 85 caregivers of children with biliary atresia who were brought for treatment at the out-patient departments of pediatric surgery departments and the Gastrointestinal Disease Clinic of two super-tertiary hospitals. Data were collected using 1) The demographic data questionnaire; 2) Caregiver burden scale for caregivers of children with biliary atresia; 3) The stress questionnaire for caregivers of children with biliary atresia 4) The social support questionnaire for caregivers of children with biliary atresia; and 5) The World Health Organization Quality of Life Brief Version (WHOQOL-BREF). Data were analyzed by using descriptive statistics and step-wise multiple regression statistics.
Main findings: Significant predictors of quality of life in caregivers of children with biliary atresia included social support, the strongest predictor ( = .529, p < .001), followed by stress (
= .276, p = .009) and caregiver burden (
= .254, p = .016) respectively. All three variables together could account for 54% of the variance explained in quality of life among caregivers of children with biliary atresia (R2 = .54).
Conclusion and recommendations: The predictability of social support, caregiver stress and burden on quality of life in caregivers of children with biliary atresia found in this study gives supportive evidence for healthcare personnel to develop a program for promoting quality of life among this population. Roles of social support, strategies for stress reduction, and attitude towards caregiver burden should be focused in the program to yield a promising result on the caregivers’ quality of life.
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