Maternal Experiences of Caring for Preterm Infants at Home After Hospital Discharge: A Qualitative Descriptive Study
DOI:
https://doi.org/10.60099/prijnr.2025.272920Keywords:
Family support, mothers, Maternal fulfillment, Preterm infant care, Qualitative descriptionAbstract
Caring for preterm infants at home following hospital discharge presents distinct challenges for mothers. Existing research provides limited insight into how mothers provide care for their preterm infants in the home setting post-discharge. This qualitative descriptive study explored maternal experiences in preterm infant care after discharge from a tertiary care hospital in Bangkok, Thailand. Using purposive sampling, eight mothers of preterm infants discharged within the past month were recruited. Semi-structured interviews were conducted to capture their experiences, and thematic analysis was used to uncover recurring patterns and insights.
The findings revealed three overarching themes: maternal fulfillment with infants’ growth, receiving support to strengthen maternal role, and challenges in accessing primary health care after discharge. Mothers expressed a sense of fulfillment through their role in fostering their infants’ growth and development, which was reinforced by observing milestones such as weight gain and improved feeding. During this period, mothers encountered numerous challenges, including managing their infants’ health concerns and balancing multiple responsibilities; support from healthcare professionals, family members, and peers proved pivotal in equipping them with the necessary skills and confidence for caregiving. Additionally, barriers to accessing primary healthcare, including distance obstacles and the limited availability of specialized preterm care, were identified. These results underscore the importance of nursing interventions that address caregiving mothers’ emotional and practical needs. Nurses could play a critical role in discharge planning by providing tailored preterm infant care education, facilitating family involvement, and ensuring continuity of care through follow-up services.
References
World Health Organization. WHO recommendations for care of the preterm or low-birth-weight infant [Internet]. Geneva: World Health Organization; 2022 [cited 2025 Feb 14]. 123 p. Available from: https://www.who.int/publications/i/item/9789240058262.
Ohuma EO, Moller AB, Bradley E, Chakwera S, Hussain-Alkhateeb L, Lewin A, et al. National, regional, and global estimates of preterm birth in 2020, with trends from 2010: a systematic analysis. Lancet. 2023;402(10409):1261-71. doi:10.1016/S0140-6736(23)00878-4. DOI: https://doi.org/10.1016/S0140-6736(23)00878-4
Cao G, Liu J, Liu M. Global, regional, and national incidence and mortality of neonatal preterm birth, 1990-2019. JAMA Pediatr. 2022;176(8):787-96. doi:10.1001/jamapediatrics.2022.1622. DOI: https://doi.org/10.1001/jamapediatrics.2022.1622
Hassan AM. Incidence of preterm infants, indications of admission, risk factors, and discharge outcome: a retrospective study. Open Nurs J. 2022;16:e187443462203250. doi:10.2174/18744346-v16-e2203250. DOI: https://doi.org/10.2174/18744346-v16-e2203250
Kinpoon, K, Chaiyarach, S. The incidence and risk factors for preterm delivery in Northeast Thailand. Thai J Obstet Gynaecol [Internet]. 2021 Mar 1 [cited 2025 Feb 14];29:100-11. Available from: https://he02.tci-thaijo.org/index.php/tjog/article/view/207803.
Intaraphet S, Kongpechr S, Mahawerawat S, Potchana R. Risk factors and outcomes of preterm birth among Northeastern Thai teenage mothers in Thailand. J South Asian Feder Obst Gynae [Internet]. 2021 [cited 2025 Feb 14];13(2):111-6. Available from: https://www.jsafog.com/doi/pdf/10.5005/jp-journals-10006-1871 DOI: https://doi.org/10.5005/jp-journals-10006-1871
Ionio C, Mascheroni E, Colombo C, Castoldi F, Lista G. Stress and feelings in mothers and fathers in NICU: identifying risk factors for early interventions. Prim Health Care Res Dev. 2019;20:e81. doi:10.1017/S1463423619000021. DOI: https://doi.org/10.1017/S1463423619000021
Hamon E, Bourdin B, Le Driant B. Parental representations after preterm birth: a narrative review. Front Psychol. 2023;14:1114418. doi:10.3389/fpsyg.2023.1114418. DOI: https://doi.org/10.3389/fpsyg.2023.1114418
Spence CM, Stuyvenberg CL, Kane AE, Burnsed J, Dusing SC. Parent experiences in the NICU and transition to home. Int J Environ Res Public Health. 2023;20(11):6050. doi:10.3390/ijerph20116050. DOI: https://doi.org/10.3390/ijerph20116050
Govindaswamy P, Laing S, Waters d, Walker K, Spence K, Badawi N. Needs and stressors of parents of term and near-term infants in the NICU: a systematic review with best practice guidelines. Early Hum Dev. 2019;139:104839. doi:10.1016/j.earlhumdev.2019.104839. DOI: https://doi.org/10.1016/j.earlhumdev.2019.104839
Sarapat P, Fongkaew W, Jintrawet U, Mesukko J, Ray L. Perceptions and practices of parents in caring for their preterm infants. PRIJNR [Internet]. 2017 Jul 10 [cited 2024 Dec 14];21(3):220-33. Available from: https://he02.tci-thaijo.org/index.php/PRIJNR/article/view/78177.
Wanduru P, Hanson C, Waiswa P, Kakooza-Mwesige A, Alvesson HM. Mothers' perceptions and experiences of caring for sick newborns in newborn care units in public hospitals in Eastern Uganda: a qualitative study. Reprod Health. 2023;20(1):106. doi:10.1186/s12978-023-01649-1. DOI: https://doi.org/10.1186/s12978-023-01649-1
Barnes S, Macdonald I, Rahmaty Z, de Goumoëns V, Grandjean C, Jaques C, et al. Effectiveness and family experiences of interventions promoting partnerships between families and pediatric and neonatal intensive care units: a mixed methods systematic review. JBI Evid Synth. 2024;22(7):1208-61. doi:10.11124/JBIES-23-00034. DOI: https://doi.org/10.11124/JBIES-23-00034
Aloysius A, Kharusi MK, Winter R, Platonos K, Banerjee J, Deierl A. Support for families beyond discharge from the NICU. J Neonatal Nurs. 2018;24(1):55-60. doi:10.1016/j.jnn.2017.11.013. DOI: https://doi.org/10.1016/j.jnn.2017.11.013
Hannan KE, Hwang SS, Bourque SL. Readmissions among NICU graduates: who, when and why? Semin Perinatol. 2020;44:151245. doi:10.1016/j.semperi.2020.151245. DOI: https://doi.org/10.1016/j.semperi.2020.151245
Kair LR, Goyal NK. Hospital readmission among late preterm infants: new insights and remaining questions. Hosp Pediatr. 2022;12(7):e273-74. doi:10.1542/hpeds.2022-006640. DOI: https://doi.org/10.1542/hpeds.2022-006640
Hebballi NB, Avritscher EB, Garcia E, Bain A, Bartz-Kurycki MA, Tsao K, et al. Healthcare utilization among infants discharged from the neonatal intensive care unit: a descriptive cost analysis. Health Serv Insights. 2023;16:1-5. doi:10.1177/11786329231169604. DOI: https://doi.org/10.1177/11786329231169604
Özberk H, Cicek O, Ayar D, Okumus H. Difficulties for mothers: home care of babies born preterm. Bezmialem Sci. 2021;9(4):498-502. doi:10.14235/bas.galenos.2021.4177. DOI: https://doi.org/10.14235/bas.galenos.2021.4177
Carvalho NA, Santos JD, Sales IM, Araújo AA, Sousa AS, Morais FF, et al. Care transition of preterm infants: from maternity to home. Acta Paul Enferm. 2021;34:eAPE02503. doi: 10.37689/acta-ape/2021AR02503. DOI: https://doi.org/10.37689/acta-ape/2021AR02503
Berman L, Raval MV, Ottosen M, Mackow AK, Cho M, Goldin AB. Parent perspectives on readiness for discharge home after neonatal intensive care unit admission. J Pediatr. 2019;205:98-104. doi:10.1016/j.jpeds.2018.08.086. DOI: https://doi.org/10.1016/j.jpeds.2018.08.086
Tilakarayasup S, Boonmat N, Tirachai N. The experiences of mothers on caring low birth weight premature infants. J Nurs Educ. 2022;9(5):603-16(in Thai).
Mahwasane T, Netshisaulu KG, Malwela TN, Maputle MS. Support needs of parents with preterm infants at resource-limited neonatal units in Limpopo Province: a qualitative study. Curationis. 2023;46(1):2409. doi:10.4102/curationis.v46i1.2409. DOI: https://doi.org/10.4102/curationis.v46i1.2409
Eduku S, Annan E, Amponsah MA. Maternal social support and resilience in caring for preterm newborns at the neonatal intensive care unit (NICU): a qualitative study. Heliyon. 2024;10(14):e34731. doi:10.1016/j.heliyon.2024.e34731. DOI: https://doi.org/10.1016/j.heliyon.2024.e34731
Kaewwimol P, Ruchiwit M, Liaw JJ. Effects of a continuity of preterm infant care program on parenting outcomes and service utilization rates. Open Public Health J. 2022;15(1): e187494452206080. doi:10.2174/18749445-v15-e2206080. DOI: https://doi.org/10.2174/18749445-v15-e2206080
Aydon L, Hauck Y, Murdoch J, Siu D, Sharp M. Transition from hospital to home: parents’ perception of their preparation and readiness for discharge with their preterm infant. J Clin Nurs. 2018;27(1-2):269-77. doi:10.1111/jocn.13883. DOI: https://doi.org/10.1111/jocn.13883
Schultz BE, Corbett CF, Hughes RG, Bell N. Scoping review: social support impacts hospital readmission rates. J Clin Nurs. 2022;31(19-20):2691-705. doi.10.1111/jocn.16143. DOI: https://doi.org/10.1111/jocn.16143
Bernardino FBS, Silva EFL, Silva RA, Mufato LF, Viera CS, Gaíva MAM. Experience of family members in the care of preterm newborns discharged from a neonatal intensive care unit. Rev Rene. 2022;23:e80705. doi:10.15253/2175-6783.20222380705. DOI: https://doi.org/10.15253/2175-6783.20222380705
Osorio SP, Salazar AM. Preparing parents for discharge from the neonatal unit, the transition, and care of their preterm children at home. Invest Educ Enferm. 2023;41(1):e04. doi:https://doi.org/10.17533/udea.iee.v41n1e04. DOI: https://doi.org/10.17533/udea.iee.v41n1e04
Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334-40. doi:10.1002/1098-240x(200008)23:4<334::aid-nur9>3.0.co;2-g. DOI: https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349-57. doi:10.1093/intqhc/mzm042. DOI: https://doi.org/10.1093/intqhc/mzm042
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101. doi:10.1191/1478088706qp063oa. DOI: https://doi.org/10.1191/1478088706qp063oa
Lincoln YS, Guba EG. Naturalistic inquiry. London: Sage; 1985. DOI: https://doi.org/10.1016/0147-1767(85)90062-8
Buys K, Gerber B. Maternal experiences of caring for preterm infants in a vulnerable South African population. Health SA. 2021;26:a1549. doi:10.4102/hsag.v26i0.1549. DOI: https://doi.org/10.4102/hsag.v26i0.1549
Cao W, Li G, Guo Y, Liu X, Wang H, Gao H. Parental readiness for hospital discharge and the relationship with growth and development of infant in China. J Pediatr Nurs. 2024;75:e112-8. doi:10.1016/j.pedn.2024.01.001. DOI: https://doi.org/10.1016/j.pedn.2024.01.001
Tanaka MC, Bernardino FBS, Braga PP, Alencastro LCDS, Gaíva MAM, Viera CS. Weaknesses in the continuity of care for preterm infants discharged from the neonatal unit. Rev Esc Enferm USP. 2024;58:e20230228. doi:10.1590/1980-220X-REEUSP-2023-0228en. DOI: https://doi.org/10.1590/1980-220x-reeusp-2023-0228en
Harahap NC, Handayani PW, Hidayanto AN. Barriers and technologies of maternal and neonatal referral system in developing countries: a narrative review. IMU. 2019;15:100184. doi:10.1016/j.imu.2019.100184. DOI: https://doi.org/10.1016/j.imu.2019.100184
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