Quality of life in pediatric patients with lumbosacral myelomeningocele compare to normal children
Objective: The aim of this study was to assess the health-related quality of life of patients and explore the factors that are associated with the quality of life in patients with lumbosacral myelomeningocele.
Material and method: The cross-sectional design study was conducted between January 2017 and December 2017. The questionnaires were given to patients aged 13 – 18 years of age and their care givers, and to parents of patients between 2 and 12 years. A second group of age matched people were given questionnaires as a control group. Patient’s health-related quality of life (HRQOL) was examined using The Pediatric Quality of Life Inventory™ (PedsQLTM) 4.0 Generic Core Scale (Thai version). The data of patients and controls were collected, compared and analysed.
Result: The mean quality of life scores of the patients with lumbosacral myelomeningocele were lower in the case of physical, emotional, social and school functioning in comparison to the scores recorded by the control group. The reductions were most marked in the factors referring to education, bladder function, bowel function, ambulation and caregiving.
Conclusion: Patients with myelomeningocele often require assistance in many aspects of their life. Caring for their physical, emotional, and social needs and their ability to function at school is important.
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