Kidney health for all: bridging the gap in kidney health education and literacy

Authors

  • Robyn Langham St. Vincent’s Hospital, Department of Medicine, University of Melbourne, Melbourne, Victoria, Australia
  • Kalantar Kalantar-Zadeh Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, California, United States
  • Ann Bonner School of Nursing and Midwifery, Griffith University, Southport, Queensland, Australia
  • Alessandro Balducci Italian Kidney Foundation, Rome, Italy
  • Li-Li Hsiao Brigham and Women's Hospital Department of Medicine, Boston, Massachusetts, United States
  • Latha Kumaraswami Tamilnad Kidney Research (TANKER) Foundation,The International Federation of Kidney Foundations - World Kidney Alliance (IFKF - WKA), Chennai, India
  • Paul Laffin International Society of Nephrology, Brussels, Belgium
  • Vassilios Liakopoulos Division of Nephrology and Hypertension, 1st Department of Internal Medicine, AHEPA Hospital, Aristotle University of Thessaloniki, Thessaloniki, Greece
  • Gamal Saadi Nephrology Unit, Department of Internal Medicine, Faculty of Medicine, Cairo University, Giza, Egypt
  • Ekamol Tantisattamo Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, California, United States
  • Ifeoma Ulasi Renal Unit, Department of Medicine, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria
  • Siu-Fai Lui International Federation of Kidney Foundations – World Kidney Alliance, The Jockey Club School of Public Health and Primary Care, The Chinese University of Hong Kong, Hong Kong, China
  • for the World Kidney Day Joint Steering Committee The World Kidney Day Joint Steering

DOI:

https://doi.org/10.52786/isu.a.52

Keywords:

Educational gap, empowerment, health literacy, health policy, information technology, kidney health

Abstract

The high burden of kidney disease, global disparities in kidney care, and poor outcomes of kidney failure bring a concomitant growing burden to persons affected, their families, and careers, and the community at large. Health literacy is the degree to which persons and organizations have or equitably enable individuals to have the ability to find, understand, and use information and services to make informed health-related decisions and actions for themselves and others. Rather than viewing health literacy as a patient deficit, improving health literacy largely rests with health care providers communicating and educating effectively in codesigned partnership with those with kidney disease. For kidney policy makers, health literacy provides the imperative to shift organizations to a culture that places the person at the center of health care. The growing capability of and access to technology provides new opportunities to enhance education and awareness of kidney disease for all stakeholders. Advances in telecommunication, including social media platforms, can be leveraged to enhance persons’ and providers’ education; The World Kidney Day declares 2022 as the year of “Kidney Health for All” to promote global teamwork in advancing strategies in bridging the gap in kidney health education and literacy. Kidney organizations should work toward shifting the patient-deficit health literacy narrative to that of being the responsibility of health care providers and health policy makers. By engaging in and supporting kidney health–centered policy making, community health planning, and health literacy approaches for all, the kidney communities strive to prevent kidney diseases and enable living well with kidney disease.

Author Biography

Li-Li Hsiao, Brigham and Women's Hospital Department of Medicine, Boston, Massachusetts, United States

 

 

References

Centers for Disease Control and Prevention. Healthy People 2030: What is health literacy? [Internet]. [cited 2022 Jan 16]. Available from: https://www. cdc.gov/healthliteracy/learn/index.html.

Nutbeam D. The evolving concept of health literacy. Soc Sci Med 2008;67:2072-8.

Lloyd A, Bonner A, Dawson-Rose C. The health information practices of people living with chronic health conditions: implications for health literacy. J Librarianship Information Science 2014;46:207-2016.

Sorensen K, Van den Broucke S, Fullam J, Doyle G, Pelikan J, Slonska Z, et al. Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health 2012;12:80.

Nutbeam D, Lloyd JE. Understanding and responding to health literacy as a social determinant of health. Annu Rev Public Health 2021;42:159-73.

Mathias-Shah J, Ramsbotham J, Seib C, Muir R, Bonner A. A scoping review of the role of health literacy in chronic kidney disease self-management. J Ren Care 2021;47:221-33.

Dinh HTT, Nguyen NT, Bonner A. Healthcare systems and professionals are key to improving health literacy in chronic kidney disease. J Ren Care 2022; 48:4-13.

Dobson S, Good S, Osborne R. Health literacy tool- kit for low and middle-income countries: A series of information sheets to empower communities and strengthen health systems. New Delhi: World Health Organization; 2015.

Taylor DM, Fraser S, Dudley C, Oniscu G, Tomson C, Ravanan R, et al. Health literacy and patient outcomes in chronic kidney disease: a systematic review. Nephrol Dial Transplant 2018;33:1545-58.

Taylor DM, Bradley JA, Bradley C, Draper H, Dudley C, Fogarty D, et al. Limited health literacy is associated with reduced access to kidney transplantation. Kidney Int 2019;95:1244-52.

Brega AG, Barnard J, Mabachi NM, Wiess, BD, DeWalt DA, Brach C, et al. AHRQ health literacy universal precautions toolkit. 2nd ed. (Prepared by Colorado Health Outcomes Program, University of Colorado Anschutz Medical Campus under Contract No. HHSA290200710008, TO#10.) AHRQ Publication No. 15-0023-EF. Rockville, MD: Agency for Healthcare Research and Quality; 2015.

Australian Commission on Safety and Quality in Health Care. Health literacy: taking action to improve safety and quality. Sydney: ACSQHC; 2014. [Internet]. [cited 2022 Jan 17] . Available from: https://www.safetyandquality.gov.au/publi- cations-and-resources/resource-library/health-lit- eracy-taking-action-improve-safety-and-quality.

Visscher BB, Steunenberg B, Heijmans M, Hofdtede JM, Deville W, van der Heide I, et al. Evidence on the effectiveness of health literacy interventions in the EU: a systematic review. BMC Public Health 2018;18:1414.

Boonstra MD, Reijneveld SA, Foitzik EM, Westerhuis R, Navis G, de Winter AF. How to tackle health literacy problems in chronic kidney disease patients? A systematic review to identify promising intervention targets and strategies. Nephrol Dial Transplant 2020;36:1207-21.

Nguyen NT, Douglas C, Bonner A. Effectiveness of self-management programme in people with chronic kidney disease: a pragmatic randomized controlled trial. J Adv Nurs 2019;75:652-64.

Synnot A, Bragge P, Lowe D, Nunn J, O’Sullivan M, Horvat L, et al. Research priorities in health communication and participation: international survey of consumers and other stakeholders. BMJ Open 2018;8:e019481.

Kalantar-Zadeh K, Kam-Tao Li P, Tantisattamo E, Kumaraswami L, Liakopoulos V, Lui SF, et al. Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere. Kidney Int 2021;99:278-84.

Jager KJ, Kovesdy C, Langham R, Rosenberg M, Jha V, Zoccali C. A single number for advocacy and communication-worldwide more than 850 million individuals have kidney diseases. Kidney Int 2019;96:1048-50.

Li PK, Garcia-Garcia G, Lui SF, Andreoli S, Fung WWS, Hradsky A, et al. Kidney health for everyone everywhere-from prevention to detection and equitable access to care. Kidney Int 2020;97:226-32.

Gilford S. Patients helping patients: the renal support network. Nephrol Nurs J 2007;34:76.

Muhammad S, Allan M, Ali F, Bonacina M, Adams M. The renal patient support group: supporting patients with chronic kidney disease through social media. J Ren Care 2014;40:216-8.

Li WY, Chiu FC, Zeng JK, Li YW, Huang SH, Yeh HC, et al. Mobile health app with social media to support self-management for patients with chronic kidney disease: prospective randomized controlled study. J Med Internet Res 2020;22:e19452.

Pase C, Mathias AD, Garcia CD, Garcia Rodrigues C. Using social media for the promotion of education and consultation in adolescents who have under- gone kidney transplant: protocol for a randomized control trial. JMIR Res Protoc 2018;7:e3.

Kalantar-Zadeh K, Jafar TH, Nitsch D, Neuen BL, Perkovic V. Chronic kidney disease. Lancet 2021; 398:786-802.

Chen L, Sivaparthipan CB, Rajendiran S. Unpro- fessional problems and potential healthcare risks in individuals’ social media use. Work 2021;68:945-53.

Henderson ML, Herbst L, Love AD. Social media and kidney transplant donation in the united states: clinical and ethical considerations when seeking a living donor. Am J Kidney Dis 2020;76: 583-5.

Henderson ML. Social media in the identification of living kidney donors: platforms, tools, and strategies. Curr Transplant Rep 2018;5:19-26.

van Deth JW, Newton K, editors. Foundations of Comparative Politics Democracies of the Modern World. 2nd ed. Cambridge, UK: Cambridge University Press; 2010. [Internet] [cited 2021 Dec 13]. Avaliable from: http://www.nicat-mammadli.narod. ru/b1.html/b36.pdf.

Anderson JE. Public Policymaking: An Introduction. 2nd ed. Boston, MA: Houghton Mifflin; 1994. 30. Young E, Quinn L, editors. Writing effective public

policy papers: a guide to policy advisers in central and Eastern Europe. Budapest, Hungary: Open Society Institute; 2002. [Internet] [cited 2021 Dec 13]. Avaliable from: https://www.icpolicyadvocacy.org/sites/icpa/files/downloads/writing_effective_public_policy_papers_young_quinn.pdf.

Young E, Quinn L, editors. Making research evidence matter: a guide to policy advocacy in transition countries. Budapest, Hungary: Open Society Foundations; 2012. [Internet]. [cited 2021 Dec 13]. Avaliable from: https://advocacyguide. icpolicyadvocacy.org/sites/icpa-book.local/files/ Policy_Advocacy_Guidebook_2012.pdf.

Start D, Hovland I. Tools for Policy Impact: A handbook for researchers, research and policy in development programme. London, UK: Overseas Development Institute; 2004. [Internet]. [cited 2021 Dec 13]. Avaliable from: https://www.ndi.org/sites/ default/files/Tools-for-Policy-Impact-ENG.pdf.

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Published

2022-06-17

How to Cite

Langham, R., Kalantar-Zadeh, K., Bonner, A., Balducci, A., Hsiao, L.-L., Kumaraswami, L., Laffin, P., Liakopoulos, V., Saadi, G., Tantisattamo, E., Ulasi, I., Lui, S.-F., & for the World Kidney Day Joint Steering Committee. (2022). Kidney health for all: bridging the gap in kidney health education and literacy. Insight Urology, 43(1), 84–93. https://doi.org/10.52786/isu.a.52

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Section

Review article