We care about your little heart

Abstract

Background: Congenital heart disease (CHD) has a global incidence of 8-10 cases per 1,000 live births. It is a structural abnormality of the heart since birth and is the second leading cause of death in children. Children who are diagnosed with congenital heart disease early in their first year of birth have a higher chance of survival and reaching adulthood.

Objective: To reduce the mortality rate in children with congenital heart disease.

Method: The first phase of development activities is to study important literature and find the causes of complications. The second phase of development activities is to search for all patient data in the hospital database, appoint a responsible person, create a follow-up register, and organize an active screening project. The third phase of development activities is when the patient has been screened and treated according to the guidelines, the patient with congenital heart disease will have a follow-up appointment and receive continuous care from Raman Hospital. There is a communication group to exchange knowledge among caregivers throughout the treatment.

Results: The development of the care model for patients with congenital heart disease in the fiscal years 2022-2024, it was found that the referral rate for diagnosis was 10.25  60 and 100 percent, respectively. The continuation rate in the destination and origin hospitals was 5.12, 58 and 100 percent, respectively. The complication rate was 38.7, 35.5 and 5.1 percent, respectively. And the mortality rate before diagnosis was 2.58, 0 and 0 percent, respectively.

Conclusion: Development of a care model for patients with congenital heart disease at Raman Hospital from development activities in the fiscal year 2022-2024 has guidelines for care so that children with congenital heart disease receive treatment, refer for diagnosis, have continuous treatment, and reduce the occurrence of severe complications. As a result, there is no incidence of mortality in children with congenital heart disease. All children with congenital heart disease have a good quality of life and can live like normal children under the care of their families and communities.