Experience of Parents Caring for Their Children with Thalassemia: Challenges and Issues for Integrative Review
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Abstract
This integrative review aimed to synthesize the experience of parents caring for their children with thalassemia. An integrative review of qualitative studies was conducted regarding the experience of parents caring for their children with thalassemia, and MEDLINE, PsycINFO, SCOPUS, and CINAHL databases were searched from January 1st, 2009 to March 1st, 2018. Five studies involving participants were included. Children with thalassemia affect their parents’ lives and perspectives. The six themes identified comprised: concern about children in the future, social death and stigmatization, absent support network, psychological distress, frustration with treatment, and the need for good coping strategies. This integrative review was designed to provide a better understanding of the experience of parents caring for their children with thalassemia. From the core themes, this integrative review led to an evidence-based practice for supporting and managing their condition effectively. Further studies should focus on how to support parents taking care of children with thalassemia.
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