Situations and Expectations of TB Care Continuity for Post-Release Persons in Jakarta, Indonesia: A Descriptive Phenomenology
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Abstract
Post-release tuberculosis (TB) treatment completion is crucial for TB prevention and control. However,the situation of post-release continuity of TB care is uncertain. The study aims to describe the situation and expectations of TB care continuity for persons after release from a prison in Indonesia using descriptivephenomenology. The participants consisted of seven TB patients, a nurse, a physician, a treatment observer in the prison, and a representative of an NGO. All participants were purposively recruited. The TB prisoner-patients were chosen based on having TB and the providers were selected based on the criterion of having experience in caring for prisoners with TB who had to continue their treatments after release. In-depth semi-structured interviews were conducted to explore the perspectives of the participants in post-released continuity of TB care situations and their expectations. The interviews were digitally recorded, transcribed verbatim, and analyzed using Colaizzi’s phenomenological method.
Five themes emerged: (1) lack of employing any provider guidelines to enhance post-release TB continuity of care; (2) loss of contact with patients at the point of release; (3) rarely receiving reports backfrom the health centers due to failure in patient follow-up; (4) desire to recover from TB and looking forward to healthty living after release; and (5) expecting providers to supervise the medications in the pre-and post-release period. This study recommends mechanisms to ensure post-release TB treatment continuationto prevent disease progression and transmission into the community.
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