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This phenomenological study aimed to describe and explain stroke patients’ experiences in receiving palliative care in community. Participants were 15 stroke patients. Data were collected via in-depth interviews from May 2016 to May 2017. Data were analyzed using van Manen’s method. Trustworthiness was established following the criteria of Lincoln and Guba.
The findings revealed that experiences of stroke patients receiving palliative care in a community were described 7 thematic categories. These categories were reflecting within the four lived worlds: 1) lived body consisted of feeling of hopelessness, worthless, and burdensome; and strengthen the mind by using Buddhist practices; 2) lived time emprised time to learn the truths of life; and time of attempt to fight, with hope for recovery; 3) lived space comprised searching places for healing; 4) lived relation consisted of acknowledging help and support from family members, and 7) acknowledging help and support from community healthcare providers.
The findings help to gain more understanding about stroke patients receiving palliative care in a community. In addition, the findings can be used as basic information in developing a care model for stroke patients receiving palliative care in communities.
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