Illness Experiences of Patients with Advanced Heart Failure in the Era of New Normal
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Abstract
Objective: The purpose of this study was to describe the illness experience of individual patients with advanced heart failure in the new normal era. Method: A qualitative research methodology based on the concept of descriptive phenomenology was used. Twelve patients who had been admitted to the cardiology intensive care units of a southern university hospital and met the criteria for advanced-stage heart failure were purposefully selected. The data were collected between April and August 2022. Semi-structured interviews and the audio recording were used to collect the data. The data were analyzed according to the Colaizzi method. Results: The findings revealed that the illness experience of advanced heart failure patient in the new normal era could be classified into four themes: 1. Being treated alone without family or friends; 2. Trusting the doctor in charge of deciding treatment; 3. Realizing that they are a high-risk group and therefore needing to adjust their self-care; and 4. Receiving symptom monitoring with a digital platform. Conclusion: Patients with advanced heart failure in the new normal era experience loneliness due to limiting family visits, trusting doctors’ decisions in care due to a lack of advanced care planning, and perceiving the risk of infection. However, they were satisfied with following up using technology during the pandemic. Therefore, developing an advanced care planning model and a digital platform for this population is crucial and needed.
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