Hopelessness Experience of Family Caregivers of Patients with Stroke
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Abstract
Caring for a stroke patient for a long time is burdensome, which can cause caregivers fatigue and stress. The aim of this descriptive qualitative study was to describe hopelessness experiences of family caregivers of the stroke patients in community. The participants were 10 family caregivers providing direct care for the stroke patients in community. Data were collected by in-depth interviews between September 2021 and April 2022. Data were analyzed by content analysis method. Five themes emerged from data analysis were as follows: 1) Perceptions of hopelessness for caring the stroke patients were tried, discouraged, self-blaming, and disappointed when the patients were not recovered, resulting in desperateness to continue caring for the patients. 2)All of caregivers had experiences to encounter hopelessness for caring the stroke patients at first year when the patients had worsen a symptom and readmission to a hospital, which caused more stress for caregivers. 3) Causes of hopelessness for caring the stroke patients were from the caregiver themselves, patients and family. 4) Hopelessness for caring the stroke patients had direct effects on the patients and caregivers. 5) Reconstruction of hope and ability to care for the patients rebounded by looking for assistance, motivation, empowerment, and learning disease progression. The results of this study disclose the hopelessness phenomenon, causes, effects, and how to deal with hopelessness of the family caregivers of the stroke patients. These findings may be useful for health personnel to understand and provide relevant support to the family caregivers of the stroke patients in community.
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บทความและรายงานวิจัยในวารสารพยาบาลกระทรวงสาธารณสุข เป็นความคิดเห็นของ ผู้เขียน มิใช่ของคณะผู้จัดทำ และมิใช่ความรับผิดชอบของสมาคมศิษย์เก่าพยาบาลกระทรวงสาธารณสุข ซึ่งสามารถนำไปอ้างอิงได้
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