The Effects of Using a Caregiver's Preparedness Enhancement for Pediatric Palliative Care Patient Program (CPEP) for Caregivers at Queen Sirikit National Institute of Child Health
Keywords:
Caregiving preparedness enhancement program, Quality of life, Pediatric palliative care patients, CaregiversAbstract
Background: Caregivers of pediatric palliative care patients often face numerous challenges, including physical, emotional, social, and spiritual issues. Receiving support to enhance their preparedness for caregiving can improve their caregiving abilities and quality of life, which in turn benefits the patient's quality of life. Therefore, the researcher developed the Caregiver's Preparedness Enhancement for Pediatric Palliative Care Patient Program (CPEP). Objective: To investigate the effects of the CPEP program on the preparedness and quality of life of caregivers of pediatric palliative care patients. Method: A quasi-experimental study was conducted with primary caregivers of children receiving palliative care at Queen Sirikit National Institute of Child Health from July 1, 2023 to April 30, 2024. The sample size of 30 participants was calculated from 70 service recipients, with 30% of the population and a 10% margin of error. Participants were randomly assigned to a control group (15 people) receiving usual services or an experimental group (15 people) receiving the CPEP program. The data collection instruments included a general information questionnaire, a Caregiver Preparedness Assessment and the World Health Organization Quality of Life - BREF tool, assessed at intake and 2 weeks after discharge. Data were analyzed using descriptive statistics, t-tests, and ANCOVA (p < .05). Results: The experimental group showed significant improvements in caregiving readiness (-11.30±4.42, p < .001) and quality of life (-25.20±3.02, p < .001). The control group showed no significant changes in caregiving readiness (-0.366±0.183, p =. 101) or quality of life (-0.02±4.40, p = .863). Conclusion: The CPEP program can enhance caregiving preparedness and improve the quality of life for caregivers of pediatric palliative care patients. These findings can be applied to develop social work services at Queen Sirikit National Institute of Child Health and serve as a model for other organizations.
References
World Health Organization. Geneva World Health Organization [Internet]. 1998 [cited 2013 Jun 7]. Available from: http://www.who.int/cancer/palliative/definition/en.
Khanjari S, Oskouie F, Eshaghian Dorche A, Haghani H. Quality of life in parent of children with leukemia and its related factors. Iran J of Nurs 2013;26(82):1-10.
Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005;115(6):e626-36.
Jones BL. The challenge of quality care for family caregivers in pediatric cancer care. Semin Oncol Nurs 2012;28(4):213-20.
Seow H, Bainbridge D. A review of the essential components of quality palliative care in the home. J Palliat Med 2023;21(S1):S37-S44.
Koonnarong O, Thaniwatananont P, Kitrungrote L. Caregiving preparedness, family relationships and role strain among caregivers of Muslim Stroke Patients. Pnu Sci J 2012;4(1):14-27.
Archbold PG, Stewart BJ, Greenlick MR, Harvath T. Mutuality and preparedness as predictors of caregiver role strain. Res Nurs Health 1990;13(6):375-84.
Henriksson A, Årestedt K. Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: a correlational, cross-sectional study. Palliat Med 2013;27(7):639-46.
Ergh TC, Rapport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil 2002;17(2):155-74.
Hudson P, Payne S, editors. Family carers in palliative care. Oxford: Oxford University Press; 2009.
Aoun SM, Gill FJ, Phillips MB, Momber S, Cuddeford L, Deleuil R, et al. The profile and support needs of parents in paediatric palliative care: comparing cancer and non-cancer groups. Palliat Care Soc Pract. 2020;14:2632352420958000.
World Health Organization. Division of health promotion, education and communication health education and health promotion unit. Health promotion glossary. Geneva: World Health Organization; 1996
Rubira EA, Marcon SR, Belasco AG, Gaiva MA, Espinosa MM. Burden and quality of life of caregivers of children and adolescents with chemotherapy treatment for cancer. Acta Paul Enferm 2012;25(4):567-73.
Klassen AF, Klaassen R, Dix D, Pritchard S, Yanofsky R, O' Donnell M, et al. Impact of caring for a child with cancer on parents' health related quality of life. J Clin Oncol Nurs 2008;26(36):26-36.
Smith CE, Piamjariyakul U, Yadrich DM, Ross VM, Gajewski B, Williams AR. Complex home care: part III-economic impact on family caregiver quality of life and patients' clinical outcomes. Nurs Econ 2010:28(6):393-9, 414.
Argimon JM, Limon E, Vila J, Cabezas C. Health-related quality-of-life of care-givers as a predictor of nursing-home placement of patients with dementia. Alzheimer Dis Assoc Disord 2005;19(1):41-4.
Chanpa M, Sanasuttipun W, Srichantaranit A. Relationships among children's age, caregivers' perceived severity of illness, stress, social support and quality of life among caregivers of children with congenital heart disease. Nurs Sci J Thail 2018;36(1):73-86.
Medical Social Work Department. (2020-2022). Annual Report. Queen Sirikit National Institute of Child Health, Thailand.
Tangjittiporn T, Tankura R, Chaiyamool S, Meesiri S. The family preparedness and associated factors with their preparedness of caring pediatric palliative patients. Queen Sirikit National Institute of Child Health. J DMS 2019;1;44(2):74-82.
Archbold PG, Stewart B. Family caregiving inventory. [dissertation]. Portland (USA): Oregon Health Sciences University; 1996.
Wirojratana V. Development of the Thai family care inventory [dissertation]. Portland (USA): Oregon Health and Science University; 2002
Puttapitak P, Panthasri P, Krungthum K. The development of a clinical nursing practice guideline for enhancing the quality of life of caregivers who cared for the terminally ill cancer patient in community. J Food Health Bioenv Sci 2011;4(1):39-52.
Henriksson A, Hudson P, Ohlen J, Thomus K, Holm M, Carlander I, et al. Use of the preparedness for caregiving scale in palliative care : a reach evaluation study. J Pain Symptom Manage 2015;50(4):533-41.
World Health Organization Quality of Life - BREF, Thai Version. Department of Mental Health, Ministry of Public Health. [Internet] [cited 2013 Jun 19]. Available from: https://dmh.go.th/test/whoqol/
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