Perceptions of Caregivers about Long-term Care Services in Bangladesh: A Qualitative Descriptive Study

Authors

  • Akramul Haque Faculty of Nursing, Thammasat University, Thailand.
  • Rangsiman Soonthornchaiya Faculty of Nursing, Thammasat University, Thailand.
  • Pranom Othaganont Faculty of Nursing, Thammasat University, Thailand.
  • Yu-Ju Chen School of Nursing, National Defense Medical Center, Taipei, Taiwan.

DOI:

https://doi.org/10.60099/prijnr.2023.261494

Keywords:

Bangladesh, Family caregivers, Long-term care, Qualitative descriptive study, Stroke survivors

Abstract

Long-term care demand for stroke survivors has increased in Bangladesh and other parts of the globe. Family caregivers play a significant role in continuing care for their relatives who are stroke survivors. Still, little is known about their experiences using long-term care services. This study explored the perceptions of Bangladeshi caregivers regarding long-term care use of family members with stroke. A qualitative descriptive study was carried out in the Rangpur division of Bangladesh between February and June 2020. A purposive sampling method was performed to select 15 participants from eligible family caregivers who met the inclusion criteria. Participants were interviewed face-to-face using semi-structured questions and recorded with a digital recording device. The duration of each interview ranged from 60 to 90 minutes. Data were analyzed using content analysis.

Four major themes emerged: 1) Understanding of long-term care, 2) The challenges of providing care, 3) Long-term care services as essential support, and 4) Facilitators and barriers to using long-term care services. The findings informed that nursing and multidisciplinary long-term care is needed for stroke survivors in the institutions and at home. The study finding has important implications for the front liners in health sectors, especially for nurses, clinicians, nurse educators, and policymakers to develop specific care units for stroke survivors and train family caregivers to ensure quality long-term care.

References

Uddin KN. Non-communicable diseases (NCDs). BIRDEM Med J. 2022;12(1):1–5. doi: 10.3329/bird.v12i1.57217.

World Health Organization. World Stroke Day 2022 [Internet]. 2022 Oct 29. Available from: https://www.who.int/srilanka/news/detail/29-10-2022-world-stroke-daystroke-day-2022

World Health Organization. The top 10 causes of death [Internet]. 2020 Dec 9. Available from: https://www. who.int/news-room/fact-sheets/detail/the-top-10- causes-of-death

Feigin VL, Brainin M, Norrving B, Martins S, Sacco RL, Hacke W, Fisher M, Pandian J, Lindsay P. World Stroke Organization (WSO): global stroke fact sheet 2022. Int J Stroke. 2022; 17(1):18-29. doi: 10.1177/174749302 11065917.

Alamgir HM. Care provisions and needs of Bangladesh’s aging population. Financ Express [Internet]. 2022 Sep 10. Available from: https://thefinancialexpress.com.bd/views/views/care-provisions-and-needs-of-bangladeshsaging-population-1662734249

Garrett-Jones EC, Anakor EA, Mamin FA, Fatema UK, Das SK. The long-term challenges faced by stroke survivors and their caregivers following a stroke in Bangladesh: a qualitative study. JoGHR. 2019;3:e2019053. doi:10. 29392/joghr.3.e2019053.

Mondal MBA, Hasan ATMH, Khan N, Mohammad QD. Prevalence and risk factors of stroke in Bangladesh: a nationwide population-based survey. eNeurologicalSci. 2022;28:100414. doi: 10.1016/j.ensci.2022.100414. 28:100414.

New Age, Health, Staff Correspondent. Stroke is now the third leading cause of death in Bangladesh [Internet]. 2021 Oct 27. Available from: https://www.newagebd.net/article/152956/stroke-now-third-leading-cause-ofdeath-in-Bangladesh

Burton JK, Ferguson EC, Barugh AJ, Walesby KE, MacLullich MJ, Susan D, Shenkin,SD, Quinn TJ. Predicting discharge to institutional long-term care after stroke: a systematic review and meta-analysis. J Am Geriatr Soc.2018;66(1):161-9. doi:10.1111/jgs.15101.

Hasan MS, Narattharaksha K, Hossain S, Afrin N. Stroke and healthcare facilities in Bangladesh and other developing countries [Internet]. In: Sanchetee P, editor. Post-stroke rehabilitation. 2022. doi: 10.5772/intechopen.101915.

Andersen RM. Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav. 1995;36(1):1-10.

Travers JL, Hirschman KB, Naylor MD. Adapting Andersen’s expanded behavioral model of health services uses to include older adults receiving long-term services and supports. BMC Geriatr. 2020;20(1):58. doi: 10.1186/s12877-019-1405-7.

National Institute of Population Research and TrainingNIPORT/Bangladesh, Associates for Community and Population Research-ACPR/Bangladesh, and ICF International. 2016. Bangladesh Health Facility Survey 2014. Dhaka, Bangladesh: NIPORT, ACPR, and ICF International.

World Health Organization. Stroke, Cerebrovascular accident: WHO, 2023. Available from: https://www. emro.who.int/health-topics/stroke-cerebrovascularaccident/index. html

Feigin VL, Forouzanfar MH, Krishnamurthi R, Mensah GA, Connor M, Bennett DA et al. Global and regional burden of stroke during 1990–2010: findings from the Global Burden of Disease Study. Lancet. 2014;383(9913):245- 54. doi: 10.1016/s0140-6736(13)61953-4.

Tsao CW, Aday AW, Almarzooq ZI, Anderson CAM, Arora P, Avery CL et al., The American Heart Association Council on Epidemiology and Prevention Statistics Committee and Stroke Statistics Subcommittee. Heart disease and stroke statistics— 2023 update: a report from the American Heart Association. Circulation. 2023;147(8):e93-621. doi: 10.1161/CIR.0000000000001123.

Mehndiratta P, Wasay M, Mehndiratta MM. Implications of female sex on stroke risk factors, care, outcome and rehabilitation: an Asian perspective. Cerebrovasc Dis. 2015;39(5-6):302-8. doi: 10.1159/000381832.

Venketasubramanian N, Yoon BW, Pandian J, Navarro JC. Stroke epidemiology in south, east, and south-east Asia: a review. J Stroke. 2017;19(3),286–94. doi: 10.5853/jos.2017.00234.

Committee on Family Caregiving for Older Adults; Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine. Families caring for an aging America. In: Schulz R, Eden J, editors. Washington, DC: National Academies Press (US); 2016. doi: 10.17226/23606.

Shulyaev K, Gur-Yaish N, Shadmi E,et al.Patterns of informal family care during acute hospitalization of older adults from different ethno cultural groups in Israel. Int J Equity Health. 2020;19(1):208. doi: 10.1186/s12939-020-01314-0.

Turale S. A brief introduction to qualitative description: a research design worth using. Pacific Rim Int J Nurs Res [Internet]. 2020 Jul 9 [cited 2023 Jan 14]; 24(3):289-91. Available from: https://he02.tcithaijo.org/index.php/PRIJNR/article/view/243180

Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6):349-57. Available from: https://doi:10.1093/intact/mzm042

Patton MQ. Qualitative evaluationand research methods. 2nd ed. Newbury Park: Sage; 1990.

Kwah LK, Diong J. National Institutes of Health Stroke Scale (NIHSS). J Physiother. 2014;60(1):61. doi:10.1016/j. jphys.2013.12.012.

Creswell JW. Research design:qualitative, quantitative, and mixed methods approaches. 2nd ed. Thousand Oaks, CA: Sage; 2003.

Doyle L, McCabe C, Keogh B, Brady A, McCann M. An overview of the qualitative descriptive design within nursing research. J Res Nurs. 2020;25(5):443-55. doi: 10.1177/1744987119880234.

Eisner EW. The enlightened eye: Qualitative inquiry and the enhancement of educational practice. New York, NY: Macmillan; 1991.

Batiema L, Sanuade O, Ganle JK, Sumah A, Baatiema L, Sumankuuro J. An ecological approach to understanding stroke experience and access to rehabilitation services in Ghana: a cross-sectional study. Health Soc Care Community. 2021;29(5): e67–78. doi: 10.1111/hsc.13243.

American Council on Aging. Medicaid Planning Assistance [Internet]. 2022 Mar 15. Available from: https://www.medicaidplanningassistance.org/what-defines-long-term-care/

Teo K, Slark J. A. systematic review of studies investigating the care of stroke survivors in long-term care facilities. Disabil Rehabil. 2016;38(8):715-23. doi:10.3109/0963 8288.2015.1059496.

Boehme C, Toell T, Lang W, Knoflach M, Kiechl S. Longer term patient management following stroke: a systematic review. Int J Stroke. 2021;16(8):917-26. doi: 10.1177/17474 930211016963.

Sidek NN, Kamalakannan S, Tengku Ismail TA, Musa KI, Ibrahim KA, Abdul Aziz Z, Papachristou Nadal I. Experiences and needs of the caregivers of stroke survivors in Malaysia-a phenomenological exploration. Front Neurol. 2022; 13: 996620. doi:10.3389/fneur.2022.996620.

The AP-NORC Center for Public Affairs Research. Longterm care in America: Americans want to age at home. 2021 May 3. Available from: https://www.longtermcarepoll.org/project/long-term-care-in-america-americanswant-to-age-at-home

CareerStaff Unlimited. Healthcare Staffing Blog: the biggest challenges of long-term care in 2023 [Internet]. 2022 Dec 29. Available from: https://www.careerstaff.com/healthcare-staffing-blog/biggest-challenges-oflong-term-care/

Boonsin S, Deenan A, Wacharasin C. Factors influencing the burden of family caregiving for survivors of stroke. Pacific Rim Int J Nurs Res [Internet]. 2021 [cited 2023 May 4];25(1):102-13. Available from: https://he02.tcithaijo.org/index.php/PRIJNR/article/view/241328

Rumi MH, Makhdum N, Rashid MH, Muyeed A. Patients’ satisfaction on the service quality of upazila health complex in Bangladesh. J Patient Exp. 2021 Aug 11;8:23743735 211034054. doi: 10.1177/23743735211034054.

Mohiuddin AK. An extensive review of patient satisfaction with healthcare services in Bangladesh. Patient Exp J. 2020;7(2):59-71. doi: 10.35680/2372-0247.1415.

Chaknum P, Harnirattisai T, Somprasert S, Chiang LC. Development of the family-based care model for stroke survivors to promote healthy family dynamics: participatory action research. Pacific Rim Int J Nurs Res [Internet]. 2023 [cited 2023 May 4]; 27(2):244-59. Available from: https://he02.tcithaijo.org/index.php/PRIJNR/article/view/262033

Downloads

Published

2023-06-17

How to Cite

1.
Haque A, Soonthornchaiya R, Othaganont P, Chen Y-J. Perceptions of Caregivers about Long-term Care Services in Bangladesh: A Qualitative Descriptive Study. PRIJNR [Internet]. 2023 Jun. 17 [cited 2024 May 14];27(3):472-84. Available from: https://he02.tci-thaijo.org/index.php/PRIJNR/article/view/261494