Factors Related to Caregiver Burden of Children with Congenital Heart Disease After Open Heart Surgery
Keywords:
Caregiver Burden of Children with Congenital Heart Disease After Open Heart Surgery, Factors RelatedAbstract
Caregivers of children with congenital heart disease after open heart surgery must take responsibility and be cautious to prevent possible complications after children have undergone open heart surgery. Thus, caregivers may feel that the care of their child is also a burden. The purpose of this correlational descriptive research was to examine factors related to caregiver burden, including perceived caregiving self-efficacy and social support. The concept of caregiver burden from Chou (2000), alongside a literature review, was used as the framework for this study. The study samples were selected by purposive sampling and included 85 caregivers of children (aged 1 to 5 years) with congenital heart disease after open heart surgery, who visited the pediatric out-patient departments of three tertiary hospitals in northern Thailand during October 2015 to January 2016. Data were collected using questionnaires which consisted of the Caregiver Burden Questionnaire, the Caregiving Self-efficacy Questionnaire, and the Social Support Questionnaire. The content validity of these questionnaires were .88 .99 and .93, respectively and the reliability were .88 .99 and .93 respectively. Data were analyzed using descriptive statistics, Pearson’s correlation coefficient, and Spearman rank correlation.
Findings of this study showed caregivers of children with congenital heart disease after open heart surgery had the burden of care at a low level. Perceptions of caregiving self-efficacy and social support showed a statistically significant negative relationship with caregiver burden (r = -.53, p < .01, r = -.38, p < .01).
The results of this study serve as preliminary information for nurses to use to promote social support and perceived self-efficacy of caregivers regarding home care of children with congenital heart disease after open heart surgery so as to minimize caregiver burden and enable them to provide care effectively.
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