Self-efficacy, Social Support and Self-management in Thalassemic Adolescents

Authors

  • Wasun Sridan Faculty of Nursing, Chiang Mai University
  • Usanee Jintrawet Faculty of Nursing, Chiang Mai University
  • Srimana Niyomkar Faculty of Nursing, Chiang Mai University

Keywords:

Self-Management, Adolescents, Thalassemia, Self-efficacy, Social Support

Abstract

Proper self-management in adolescents with thalassemia will lead to good health outcomes and proceed to productive adults. The objective of this descriptive research was to investigate self-management, and the relationship between self-efficacy, social support and self-management in thalassemic adolescents. The conceptual framework is based on self-management concept by Schilling, Grey, & Knafl, (2002); Schilling et al., (2009) and a review literature. Eighty five adolescents with thalassemia (15 to 17 years old) were purposively recruited from the pediatric out-patient department or the hematology clinic of three tertiary hospitals, northern Thailand. The research instruments included the self-efficacy in adolescents with thalassemia scale, the social support in self-management in adolescents with thalassemia scale, and the self-management in adolescents with thalassemia scale. The content validity index (CVI) of these questionnaires were .90, 1.00 and 1.00, respectively. The reliability showed acceptable value of 0.74, 0.72 and 0.81, respectively. Data were collected from July to October 2017, and were analyzed using descriptive statistics and the Spearman’s rank correlation coefficient. The results were as follows: 1. Adolescents with thalassemia of 81.18 % showed the mean score of self-management at a high level (x = 69.72, S.D. = 8.31). 2. Self-efficacy and social support were statistically significant moderate positive relationship with self-management in adolescents with thalassemia (r = .49, p < .001, r = .45, p < .001, respectively). The findings of this study serve as the preliminary data for related health personnel, nurses in particular, to effectively promote self-management in adolescents with thalassemia that may increase quality of life and reduce further complications.

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References

Delea, T. E., Edelsberg, J., Sofrygin, O., Thomas, S. K., Baladi, J. F., Phatak, P. D., & Coates, T. D. (2007). Consequences and costs of noncompliance with iron chelation therapy in patients with transfusion-dependent thalassemia: A literature review. Transfusion, 47(10), 1919-1929.

Fucharoen, S., Tanpaijit, W., Torjarat, K., Wipraksit, W., & kaewkuychr, A. (2017). Guidelines for the care of thalassemia patients in general practice. Bangkok: Paliving printing. (in Thai)

Fucharoen, S. (2013). Anemia, thalassemia and hemoglobinopathies in northeast Thailand, Lao PDR and Vietnam. Srinagarind Medical Journal, 28(4), 153-157. (in Thai)

Iannotti, R. J., Schneider, S., Nansel, T. R., Haynie, D. L., Plotnick, L. P., Clark, L. M., & Simons-Morton, B. (2006). Self-efficacy, outcome expectations, and diabetes self-management in adolescents with type 1 diabetes. Journal of Developmental & Behavioral Pediatrics, 27(2), 98-105.

Ontrakrai, N., Jintrawet, U., & Chotibang, J. (2016). Factors Related to Self-Management Behaviors in Adolescent with Type 1 Diabetes. Nursing Journal, 48(2), 246-258. (in Thai)

Pansuwan, A., Fucharoen, G., Fucharoen, S., Himakhun, B., & Dangwiboon, S. (2011). Anemia, iron deficiency and thalassemia among adolescents in northeast Thailand: Results from two independent surveys. Acta Haematologica Journal, 125(4), 186-192.

Piga, A., Gaglioti, C., Fogliacco, E., & Tricta, F. (2003). Comparative effects of deferiprone and deferoxamine on survival amd cardiac disease im patients with thalassemia major:A retrospective analysis. Haematologica, 88(1), 489-496.

Polit, D. F. (2010). Statistic and data analysis for nursing research (2nd ed.). New Jersey: Pearson Education.

Razzazan, N., Ravanipour, M., Jahanpour, F., Zarei, A. R., Motamed, N., & Hosseini, S. (2014). Investigating challenges facing self-management empowerment education in adolescents and youths with major thalassemia. Jundishapur Journal of Chronic Disease Care, 3(4), 1-7.

Rhee, H., Belyea, M. J., Ciurzynski, S., & Brasch, J. (2009). Barriers to asthma self-management in adolescents: Relationships to psychosocial factors. Pediatric Pulmonology, 44(2), 183-191.

Schilling, L. S., Grey, M., & Knafl, K. A. (2002). The concept of self-management of type 1 diabetes in children and adolescents: An evolutionary concept analysis. Journal of Advanced Nursing, 37(1), 87-99.

Schilling, L. S., Dixon, J. K., Knafl, K. A., Lynn, M. R., Murphy, K., Dumser, S., & Grey, M. (2009). A new self-report measure of self-management of type 1 diabetes for adolescents. Nursing Research, 58(4), 228-236.

Sin, M. K., Kang, D. H., & Weaver, M. (2005). Relationships of asthma knowledge, self-management, and social support in African American adolescents with asthma. International Journal of Nursing Studies, 42(3), 307-313.

Srikulwong, N., Kantawang, S., & Jintrawet, U. (2012). Factors influencing health promotion behaviors of adolescents with epilepsy. Nursing Journal, 39(4), 23-33. (in Thai)

Thoraphan, R., Teerarungsikul, N., Sananreungsak, S., (2017). Factors related to discomfort symptom management of thalassemia children treated by iron chelation. Journal of Health and Nursing Education, 23(2), 32-46. (in Thai)

Vichinsky, E. (2005). Changing patterns of thalassemia worldwide. Annals of the New York Academy of Sciences, 1054(1), 18-24.

Published

2021-12-20