Main Article Content
This phenomenological study aimed to explore family members’ experience in providing care for
persons with stroke at home. Data were collected via in-depth interviews with 18 family members who had
experience of providing care for persons with stroke at home. Data were collected from May 2016 to June
2017. Data were analyzed using van Manen’s Method. Trustworthiness was established following the criteria
of Lincoln and Guba.
Eight themes emerged based on van Manen’s four lived worlds. There were lived body: 1) lack
of knowledge, 2) feeling of burden; lived time: 3) experience of long-term caring, 4) being in a time of
retribution; lived space: 5) being in a cold dark hall, 6) being in a supporting community; and lived relation:
7) caring and sharing among family member, and 8) maintaining strong relationship between the patients
and the family caregivers.
The findings help to understand the phenomena of continuing care for stroke patients at home, supportive
factors in providing care and its limitations. These findings can be used as database in developing projects
to enhance quality of life of stroke patients and family caregivers.
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