Quality of Life among Caregivers of Children with Cancer undergoing Treatment
Main Article Content
Abstract
Abstract
This study aims to explore quality of life among family caregivers of children with cancer, during the time that children were receiving treatment and attending appointments in the hematology clinic and pediatric ward of Siriraj Hospital. Questionnaires were used for data collection, and consisted of a Demographic Data Record Form, Treatment for Children with Cancer Data Record Form and a Caregiver Quality of Life Questionnaire. Data were analyzed using descriptive statistics and the Kruskal-Wallis H Test. The result revealed that, caregivers had a moderate level of quality of life. Each aspect of caregivers’ quality of life was at a moderate level, including physical well-being, social well-being, psychological well-being, and spiritual well-being. Based on the testing, statistically significant (p < 0.05) differences were found in the median of the caregivers’ level of quality of life, when compared by the age of children with cancer, and by duration of illness of the children. These findings suggest the importance of further study of other possible factors affecting quality of life among caregivers of children with cancer during treatment, in order to develop guidelines for improving the capabilities of caregivers.
Keywords: Quality of Life, Caregiver, Children with Cancer
Article Details
บทความ ข้อมูล เนื้อหา รูปภาพ ฯลฯ ที่ได้รับการตีพิมพ์ในรามาธิบดีพยาบาลสาร ถือเป็นลิขสิทธิ์ของวารสาร หากบุคคลหรือหน่วยงานใดต้องการนำทั้งหมดหรือส่วนหนึ่งส่วนใดไปเผยแพร่หรือเพื่อกระทำการใด ใด จะต้องได้รับอนุญาตเป็นลายลักษณ์อักษรจากรามาธิบดีพยาบาลสารก่อนเท่านั้น
References
2009. (in Thai)
2. Imsamran W, Chaiwarawattana A, Wiangnon S,Pongnikorn D. Cancer in Thailand Vol. VIII, 2010-2012.
National Cancer Institute, Thailand. 2015. (cited 2018 April 21). Available from: https://med.mahidol.ac.th/
cancer_center/th/news/event/22082016-1521-th (inThai)
3. Mueller MF. Family caregiver quality of life in a pediatric oncology setting. [dissertation]. Florida: University of
Florida; 2008.
4. Litzelman K, Catrine K, Gangnon R, Witt WP. Quality of life among parent of children with cancer or brain tumors:
the impact of child characteristics and parental psychosocial factors. Qual Life Res. 2011;20:1216-69.
5. Klassen AF, Klaassen R, Dix D, Pritchard S, Yanofsky R, O’ Donnell M, et al. Impact of caring for a child with
cancer on parents’ health related quality of life. J Clin Oncol Nurs. 2008; 26(38):26-36.
6. Smith CE, Piamjariyakul U, Yadrich DM, Ross VM,Gajewski B, Williams AR. Complex home care: part III
economic impact of family caregiver quality of life and patients’ clinical outcomes. Nurs Econ. 2010;28:393-
9, 414.
7. Argimon JM, Limon E, Vila J, Cabezas C. Health-related quality-of-life of care-givers as a predictor of nursinghome
placement of patients with dementia. Alzheimer Dis Assoc Disor. 2005;19:41-4.
8. Lu L, Pan B, Sun W, Cheng, Chi T, Wang L. Quality of life and related factors among cancer caregivers in China.
Psychiatry Clin Neurosci. 2010;64: 505-13.
9. Kim Y, Spillers RL, Hall DL, Quality of life of family caregivers 5 years after a relative’s cancer diagnosis:
follow-up of the national quality of life survey for caregivers. Psycho-Oncology. 2012; 21:273-81. doi:
10.1002/pon.1888.
10. Ferrell B R, Grant M, Dow KH, Quality of life model applied to family caregivers. 2001. (cited 2013 August
5). Available from: http://prc.coh.org/pdf/Family%20 Caregiver%20QOL%20Model. pdf
11. Surayuthpreecha K.Cancer in Children.In: Sirilerstrakoon S, Wongjanlongsin S, Ariyaprayoon P, Jirajarat M, editors.
Nursing care of patient with cancer. 1st ed. Samut Prakan:Sinthaweegit Printing; 2012. (in Thai)
12. Kumsuebsai T. Accidental reventive behavior of the elderlies in Tambon Huayploo, Amphoe nakhon Chai Si,
Nakhon Pathom province. [thesis]. Nakhon Pathom:Silpakorn University; 2007. (in Thai)
13. Roy C, Andrews HA. The Roy adaptation model. 2nd ed. Stamford, CT: Appletoname & Lange; 1999.
14. Faul , Erdfelder E, Buchner A, Lang A. Statistical power analyses using G*Power 3.1: Tests for correlation and
regression analyses. Behavior Research Methods. 2009;41:1149-60.
15. Panpruek W. Handout subject 251712 Statistics applied to behavioral sciences. Khon Kaen: Faculty of Nursing.
Khon Kaen University; 1992.
16. Haikel AL, Joyce YT, Joanne C, Russell KY, Siew EL,Ee HK, Rathi M. Quality of life of family caregivers of
cancer patients in Singapore and globally. Singapore Med J. 2017;58(5): 258-61doi: 10.11622/smedj.
2016083
17. Elizete AR, Maria AM, Mariano M, Dulce AB, Angelica GS. Taking care of children with cancer: evaluation of the
caregivers’ burden and quality of life. Rev. Latino-Am.Enfermagem. 2011;19(3): 515-22. doi:10.1590/
1414-462X201500010009.
18. Bevans MF, Sternberg EM. Caregiving burden, stress, and health effects among family caregivers of adult cancer
patients. JAMA. 2012; 307(4): 398-403. doi:10.1001/jama.2012.29.
19. Malhotra S, Khan W, Bhatia MS. Quality of life of parents having children with developmental disabilities. Delhi
Psychiatry Journal. 2012;15(1):171-6.
20. Ezzat O, Bayoumi M, Samarkandi OA. Quality of life and subjective burden on family caregiver of children with
autism. AJNS. 2017;6(1):33-9.
21. Yun YH, Rhee YS, Kang IO, Lee JS, Bang SM, Lee WS,Kim, JS, Kim SY, Shin SW, Hong YS. Economic burdens
and quality of life of family caregivers of cancer patients. Oncology. 2005;68: 107–14. doi: 10.1159/ 000085703
22. Wannasiri S. The needs of family caregivers of cancer patients and related factors. [thesis]. Bangkok:
Chulalongkorn University; 2005. (in Thai)
23. Turkoglu N, Kilic D. Effects of care burdens of caregivers of cancer patients on their quality of life. Asian Pac J Cancer Prev. 2012;13(8): 4141-5.
24. Anna FK, Robert K, David D, Shelia P, Rochelle Y, Maureen D, Amie S, Lillian S. Impact of Caring for a child
with cancer on parents’ health-related quality of life. J Clin Oncol. 2008; 26:5884-9.
25. Orem D. Nursing concepts of practice. 6th ed. St. Louis: Mosby;2001.
26. Roy C, Andrews HA. The Roy adaptation model. 2nd ed.Stamford, CT: Appletoname & Lange; 1999.