Factors Related to Shared Decision Making Needs Regarding Medical Treatments of Critically Ill Neurological Patients’ Families
Keywords:
shared decision making, needs, information receiving, attitude, Critically Ill NeurologicalAbstract
Critically ill patients with neurological disorders have trouble with their brain function and may be unable to share the decision making regarding their medical treatment. Therefore, their families must make these decisions on their behalf. The purpose of this descriptive correlational study was to explore the shared decision making needs regarding medical treatment of families of critically ill patients with neurological disorders
and related factors. The participants were family members of 85 critically ill patients with neurological disorders admitted to the surgical and medical intensive care units at Chiangmai Neurological Hospital, from July to October 2015. The participants were selected by purposive sampling. Data were collected using three Questionnaires: 1) Shared Decision Making Needs of Family Regarding Medical Treatment Questionnaire, 2) Information Receiving Regarding Shared Decision Making Needs Related to Medical Treatment Questionnaire, and 3) Attitudes Regarding Shared Decision Making Needs for Medical Treatment Questionnaire. Content validity of the questionnaires were determined by five experts in the field. Overall internal reliability of three Questionnaires tested by Cronbach alpha were .96, .94, and .80 respectively. Data were analyzed using descriptive statistics and Pearson correlation coefficient.
The results showed that:
- The shared decision making needs regarding medical treatment of critically ill neurological patients’ families were at a high level (90.18%)( = 93.52, S.D. = 12.79); and
- There were no statistically significant correlation found among shared decision making needs of families, information receiving regarding shared decision making related to medical treatment, and attitudes regarding shared decision making related to medical treatment.
References
Abbott, K. H., Sago, J. G., Breen, C. M., Abernethy, A. P., & Tulsky, J. A. (2001). Families looking back: one year after discussion of withdrawal or withholding of life-sustaining support. Critical Care Medicine Journal, 29(1), 197-201.
Adelman, E. E., & Zahuranec, D. B. (2012). Surrogate decision making in neurocritical care. CONTINUUM:Lifelong Learning in Neurology, 18 (3), 655-658.
Anderson, W. G., Arnold, R. M., Angus, D. C., & Bryce, C. L. (2009). Passive decision-making preference is associated with anxiety and depression in relatives of patients in the intensive care units. Journal of Critical Care, 24(2), 249-254.
Azoulay, E., Pochard, F., Chevret, S., Aarie, C., Annane, D., Bleichner, G., … Schlemmer, B. (2004).
Half the family members of intensive care unit patients do not want to shared in the decision-making process: a study in 78 French intensive care units. Critical Care Medicine, 32 (9), 1832-1838.
Berger, J. T., DeRenzo, E. G., & Schwatz, J. (2008). Surrogate decision making: reconciling ethical theory and clinical practice. Annals of Internal Medicine, 149 (1), 48-53.
Bernardini, G. L. (2013). Prognostic assessment in neurocritical care. Retrieved from http://www.neurocriticalcare.org/sites/default/files/pdfs/20.Prognosis.final.pdf
Braun, U. K., Beyth, R. J., Ford, M. E., & McCullough, L. B. (2008). Voices of African American, Caucasian, and Hispanic surrogates on the burdens of end-of-life decision making. Journal of General Internal Medicine, 23 (3), 267-274.
Charles, C., Gafni, A., & Whelan, T. (1997). Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine, 44 (5), 681-692.
ChatGaew, P. (2005). Holistic End of Life Care in the ICU. In Chairat Pempikul & Dusit Satawon(Eds.), Disasters Roles of Critical Care (p. 160-166). Bangkok: BeYond Enterprice Co, Ltd.(In Thai)
Curtis, J. R., & Vincent, J-L. (2010). Ethics and end-of-life care for adults in the intensive care unit.The Lancet, 376 (9749), 1347-1353. doi:10.1016/S0140-6736(10)60143-2
Day, A., Haj-Bakri, S., Lubchansky, S. A., & Melrta, S. (2013). Sleep, anxiety and fatigue in familymembers of patients admitted to the intensive care unit: a questionnaire study. Critical Care,17 (R91), 1-7. doi:10.1186/cc12736
Elwyn, G., Frosch, D., Thomson, R., Joseph-Williams, N., Lloyd, A., Kinnersley, P., ... Barry, M. (2012).Shared decision making: a model for clinical practice. Journal of General Internal Medicine,27 (10), 1361-1367. doi:10.1007/s11606-012-2077-6
Frivold, G., Dale, B., & Slettebo, A. (2015). Family members’ experiences of being cared for by nurses and physicians in Norwegian intensive care units: A phenomenological hermeneutical study. Intensive and Critical Care Nursing, 31 (4), 232-240.
Gay, E. B., Pronovost, P. J., Bassett, R. D., & Nelson, J. E. (2009). The intensive care unit familymeeting: making it happen. Journal of Critical Care, 24(4), 629e1-629e12.
Huang, Y-C., Huang, S-J., & Ko, W-J. (2010). Survey of do-not-resuscitate orders in surgical intensive care units. Journal of the Formosan Medical Association, 109(3), 201-208.
Jacobsen, M. J., O’Connor, A. M., & Stacey, D. (2013). Decisional needs assessment in populations. A workbook for assessing patients’ and practitioners’ decision making needs. Retrieved from http://med.dartmouth-itchcock.org/documents/population_needs.pd f
Kitcherner, N., & Hashem, S. (2012). Assessment of patients in neurological emergency. In Kitchener, N., Hashem, S., Wanba, M., Khalaf, M., Zarife, B., & Mansoor, S (Eds.), The Flying publisher guideto critical care in neurology.
Kumwilaisak, K., Kyokong, O., & Indrambarya, T. (2008). Factors influencing length of stay in neurosurgical intensive care unit. Journal of the Medical Association of Thailand, 91 (6), 875-881.
Lam, P., & Beaulieu, M. (2004). Experiences of families in the neurological ICU: a bedside phenomenon. Journal of Neuroscience Nursing, 36 (3), 142-152.
Lazaridis, C., DeSantis, S. M., McLawhorn, H., & Krishna, V. (2012). Liberation of neurosurgical patients from mechanical ventilation and tracheostomy in neurocritical care. Journal of Critical Care, 27 (4), 417e1-417e8.
Muehlschlegel, S., Shutter, L., Col, N., & Goldberg, R. (2015). Decision aids and shared decision making in neurocritical care: An unmet need in our Neuro ICUs. Neurocritical Care, 23(1), 127-130.
Muller-Engelmann, M., Keller, H., Donner-Banzhoff, N., & Krones, T. (2011). Shared decision making in medicine: The influence of situational treatment factors. Patient Education and Counseling,82 (2), 240-246. doi:10.1016/j.pec.2010.04.028
Restrepo, M. I., Anzueto, A., Arroliga, A. C., Afessa, B., Atkin son, M. J., Ho, N. J., ... Kollef, M. H.(2010). Economic burden of ventilator-associated pneumonia based on total resourceutilization. Infection Control and Hospital Epidemiology, 31 (5), 509-515.
Schaller, M., & Kessler, M. (2006). On the difficult of neurosurgical end of life decisions. Journal of Medical Ethics, 32(2), 65-69.
Satawon, D. (2011). Palliative Care in the ICU Setting. In Dusit Satawon, Anan Wattanathum, &Akarin Phumpichet (Eds.), Critical Care Medicine: Make it Easy (p. 527-536). Bangkok:BeYond Enterprice Co, Ltd. (In Thai)
Wendler, D., & Rid, A. (2011). Systematic review: the effect on surrogate of making treatmentdecisions for others. Annal of Internal Medicine Journal, 154(5), 336-351.
White, D. B.,Engelberg, R. A., Wenrich, M. D., Lo, B., & Curtis, J. R. (2007). Prognostication during physicianfamily discussions about limiting life support in intensive care units. Critical Care Medicine, 35 (2), 442-448.
Wong, P., Liamputtong, P., Koch, S., & Rawson, H. (2015). Families’ experiences of their interactions with staff in an Australian intensive care unit (ICU): A qualitative study. Intensive and Critical Care Nursing, 31 (1), 51-63.
Downloads
Published
How to Cite
Issue
Section
License
บทความที่ได้รับการตีพิมพ์เป็นลิขสิทธิ์ของวารสารพยาบาลสาร
ข้อความที่ปรากฏในบทความแต่ละเรื่องในวารสารวิชาการเล่มนี้เป็นความคิดเห็นส่วนตัวของผู้เขียนแต่ละท่านไม่เกี่ยวข้องกับมหาวิทยาลัยเชียงใหม่ และคณาจารย์ท่านอื่นๆในมหาวิทยาลัยฯ แต่อย่างใด ความรับผิดชอบองค์ประกอบทั้งหมดของบทความแต่ละเรื่องเป็นของผู้เขียนแต่ละท่าน หากมีความผิดพลาดใด ๆ ผู้เขียนแต่ละท่านจะรับผิดชอบบทความของตนเองแต่ผู้เดียว
