Illness Representation and Coping with Dying Among Patients with End-stage Renal Disease

Authors

  • Yanin Ngernsrisuk Faculty of Nursing, Chiang Mai University
  • Tipaporn Wonghongkul Faculty of Nursing, Chiang Mai University
  • Chiraporn Tachaudomdach Faculty of Nursing, Chiang Mai University

Keywords:

Illness Representation, Coping with Dying, End-Stage Renal Disease

Abstract

The number of patients with end-stage renal disease (ESRD) is increasing. This disease affects a patient’s illness representation as well as results in a life-threatening confrontation. The purposes of this descriptive study were to determine the levels of illness representation and coping with dying, as well as to explore the relationship between illness representation and coping with dying in patients with ESRD. The 306 participants were purposively selected after consideration of the inclusion criteria. The data collection instruments consisted of a demographic data form, the Brief Illness Perception Questionnaire (Brief IPQ), and the Coping with Dying Questionnaire. The validity and reliability of the instruments were examined. Five experts assessed the content's quality. When the confidence test was performed in end-stage renal failure patients with similar characteristics to the group, the content conformance index was 1.0. The Kuder-Richardson-20 method was used to determine the internal homogeneity of the 16 samples. A confidence value of .92 was obtained.

        The results of the study showed that the participants had a moderate level of overall illness representation (   = 38.72, SD = 10.84). The mean scores of coping with dying were at a high level (  = 58.36, SD = 16.62).Regarding the relationship, the results showed that the illness representations subscale of personal control (rs = -.130, p < 0.05) and coherence (rs = -.154, p < 0.01) had a significantly negative correlation with coping with dying.

        The results from this study provide basic information about illness representation and coping with dying, as well as the relationships between both variables. These results will benefit nurses in their provision of appropriate care for patients with ESRD and will benefit further research.

References

Alharbi, A. A., Alraddadi, R. M., Alharbi, A. A., & Alharbi, Y. A. (2017). Comparison of Saudi Arabian hemodialysis and peritoneal dialysis patients' illness perceptions. Renal Failure, 39(1), 187-192. doi:10.1080/0886022x.2016.1256314

Bristowe, K., Horsley, H. L., Shepherd, K., Brown, H., Carey, I., Matthews, B., ... Murtagh, F. E. M. (2015). Thinking ahead the need for early advance care planning for people on haemodialysis: A qualitative interview study. Palliative Medicine, 29(5), 443-450. doi:10.1177/0269216314560209

Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006). The brief illness perception questionnaire. Journal of Psychosomatic Research, 60(6), 631-637. doi:10.1016/j.jpsychores.2005.10.020

Cervantes, L., Jones, J., Linas, S., & Fischer, S. (2017). Qualitative interviews exploring palliative care perspectives of Latinos on dialysis. Clinical Journal of the American Society Nephrology, 12(5), 788-798. doi:10.2215/cjn.10260916

Clarke, A. L., Yates, T., Smith, A. C., & Chilcot, J. (2016). Patient's perceptions of chronic kidney disease and their association with psychosocial and clinical outcomes: A narrative review. Clinical Kidney Journal, 9(3), 494-502. doi:10.1093/ckj/sfw014

Corr, C. A., Nabe, C., & Corr, D. M. (2009). Death and dying, life and living (6th ed.). Canada: Wadsworth/Cengage Learning.

Fresenius Medical Care. (2018). 2018 Annual medical report going further, faster: Translating science into practice. Retrieved from https://newsroom.fmcna.com/2018FMCNAReport/

Jayanti, A., Foden, P., Wearden, A., & Mitra, S. (2016). Illness beliefs in end stage renal disease and associations with self-care modality choice. Public Library of Science One, 11(7), 1-17. doi: 10.1371/journal.pone.0154299

Johnson, S. (2015). Near-death experience in patients on hemodialysis. Nephrology Nursing Journal, 42(4), 331-336.

Knowles, S., Swan, L., Salzberg, M., Castle, D., & Langham, R. (2014). Exploring the relationships between health status, illness perceptions, coping strategies and psychological morbidity in a chronic kidney disease cohort. American Journal of the Medical Sciences, 348(4), 271-276. doi:10.1097/maj.0000000000000242

Krejcie, R. V., & Morgan, D. W. (1970). Determining sample size for research activities. Educational and Psychological Measurement, 30, 607-610.

Leventhal, H., Benyamini, Y., Brownlee, S., Diefenbach, M., Leventhal, E. A., Patrick-Miller, L., & Robitaille, C. (1997). Illness representations: Theoretical foundations. Perceptions of Health and Illness, 2, 19-46.

Leventhal, H., Nerenz, D. R., & Purse, J. (1984). Illness representations and coping with health threats. New Jersey: Lawrence Erlbaum Associates.

Medical Record and Statistics, Maharaj Nakorn Chiang Mai Hospital, (2017). Maharaj Nakorn Chiang Mai Hospital’s Patients Statistic 2017. Chiang Mai: Medical Record and Statistics. (in Thai)

Mollaoglu, M, C. F., & Mollaoglu, M. (2016). Illness perception and hopelessness in hemodialysis. Clinical Nephrology, 2(2), 44-48. doi:10.17352/acn.000014

Molzahn, A., Sheilds, L., Bruce, A., Stajduhar, K. I., Makaroff, K. S., Beuthin, R., & Shermak, S. (2012). Perceptions regarding death and dying of individuals with chronic kidney disease. Nephrology Nursing Journal, 39(3), 197-204.

Nakcharoen, U. (2002). Preparing for death among people living with HIV. Nursing Journal, 29(2), 41-54. (in Thai)

Oyegbile Y. O., & Brysiewicz P. (2017). Family caregiver's experiences of providing care to patients with end-stage renal disease in South-West Nigeria. Journal of Clinical Nursing, 26(17-18), 2624-2632. doi: 10.1111/jocn.13689. Epub 2017 Feb 14. PMID: 27982491

Pagels, A. A., Soderquist, B. K., & Heiwe, S. (2015). Differences in illness representations in patients with chronic kidney disease. Journal of Clinical Nephrology and Renal Care, 41(3), 146-155. doi:10.1111/jorc.12117

Prekbunjun, S. (2004). Spiritual experience of patients with end stage of renal failure. (Master’s Thesis). Chulalongkorn University. (in Thai)

Sellars, M., Clayton, J. M., Morton, R. L., Luckett, T., Silvester, W., Spencer, L., ... Tong, A. (2018). An interview study of patient and caregiver perspectives on advance care planning in ESRD. American Journal of Kidney Diseases, 71(2), 216-224. doi: 10.1053/j.ajkd.2017.07.021

Sheilds, L., Molzahn, A., Bruce, A., Schick Makaroff, K., Stajduhar, K., Beuthin, R., & Shermak, S. (2015). Contrasting stories of life-threatening illness: A narrative inquiry. International Journal of Nursing Studies, 52(1), 207-215.

Silva, R. A. R., Souza, V. L., Oliveira, G. J. N., Silva, B. C. O., Rocha, C. C. T., & Holanda, J. R. R. (2016). Coping strategies used by chronic renal failure patients on hemodialysis. Escola Anna Nery, 20(1), 147-154. doi: 10.5935/1414-8145.20160020

Strategy and Planning Division Office of the Permanent Secretary Ministry of Public Health (2018). Statistic Thailand 2017. Nonthaburi: Strategy and Planning Division Ministry of Public Health. (in Thai)

Thepwan, P. (2010). Cognitive representation, emotional responses and hospitalization experience in predicting decision making for receiving treatment among patients with acute coronary syndrome. (Master’s Thesis). Mahidol University. (in Thai)

Velez-Velez, E., & Bosch, R. J. (2016). Illness perception, coping and adherence to treatment among patients with chronic kidney disease. Journal of Advanced Nursing, 72(4), 849-863. doi: 10.1111/jan.12873

Yodchai, K., Dunning, T., Savage, S., & Hutchinson, A. M. (2017). The role of religion and spirituality in coping with kidney disease and haemodialysis in Thailand. Scandinavian Journal of Caring Sciences, 31(2), 359-367. doi: 10.1111/scs.12355

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Published

2021-12-20

How to Cite

Ngernsrisuk, Y., Wonghongkul, T., & Tachaudomdach, C. (2021). Illness Representation and Coping with Dying Among Patients with End-stage Renal Disease. Nursing Journal CMU, 49(3), 95–108. Retrieved from https://he02.tci-thaijo.org/index.php/cmunursing/article/view/255355

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Section

Research Article