The Needs of Caregivers for Persons with Parkinson’s Disease
Keywords:
Caregivers’ needs, Caregivers of persons with Parkinson’s disease, Parkinson’s diseaseAbstract
Parkinson’s disease is a chronic and incurable illness. The symptoms get worse throughout the duration of the disease. As a result, patients’ ability to take care of themselves decreases, and they require continuous assistance from their caregivers who, therefore, are important persons in caring for Parkinson’s disease patients. The purpose of this descriptive study was to explore the needs of caregivers of persons with Parkinson’s disease. The participants were caregivers of persons with Parkinson’s disease who were treated by neurologists from four hospitals. The 214 caregivers were purposively selected to be participants. Data collection instruments included: 1) a personal record form for caregivers, 2) a personal record form for persons with Parkinson’s disease, and 3) an interview form on caregivers’ needs. Data were analyzed using descriptive statistics.
The results showed that:
- The overall needs of caregivers of persons with Parkinson’s disease were at a moderate level (= 2.13, S.D. = 0.91). For the specific aspects of caregiver needs, four aspects (information, physical, psychological, and legal and/or financial) were at a moderate level, and three aspects (spiritual, respite, and household management) were at a mild level.
- The needs of caregivers were different related to the level of disease severity. Caregivers’ needs were at a mild level when disease severity was at level 1, and caregivers’ needs were a moderate level when disease severity was at level 2, 3, 4, and 5.
- The needs of caregivers were different relative to the personal characteristics of caregivers. The personal characteristics of caregivers which were related to different needs were: age, education, occupation, comorbidities, family income, relationship with patients, and duration of patient care.
Nurses should plan and advise caregivers regarding information, physical, psychological, and legal and/or financial needs by considering disease severity and the personal characteristics of caregivers, to provide appropriate care relative to patients’ conditions and to meet the needs of caregivers, which will increase the efficiency of care.
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