Factors Related to Care Behaviors Among Caregivers of Children with Congenital Heart Disease After Heart Surgery
Keywords:
Care behaviors, Children with congenital heart diseases, After heart surgeryAbstract
Care behaviors among caregivers of children with congenital heart disease after heart surgery are crucial for the optimal health status of children after the surgery. This correla- tional study aimed to examine factors related to care behaviors among caregivers of children with congenital heart disease after heart surgery. The sample consisted of caregivers of children aged 1 to 6 years with acyanotic congenital heart disease after undergoing open-heart surgery, who attended follow-up appointments within the first two weeks post-surgery at the pediatric cardiology clinic at 5 tertiary hospitals in the northern region, with a total of 85 cases. The research instruments included a demographic data record form, the Care Behaviors of Caregivers of Children with Congenital Heart Disease After Heart Surgery Questionnaire, the Self-Efficacy of Caregivers Questionnaire, and the Social Support Questionnaire. Data were analyzed using descriptive statistics and Spearman’s correlation coefficient statistics.
The research results showed that the overall care behaviors of caregivers of children with congenital heart disease after heart surgery were at a high level (M = 66.95, SD = 8.22), accounting for 65.9%. Caregivers' self-efficacy and social support were significantly positively correlated with care behaviors at a high level (r = .736, r = .759, p < .001, respectively).
These findings can be used as preliminary data to promote more efficient care behaviors among caregivers of children with congenital heart disease after heart surgery during the first two weeks at home in order to provide correct and appropriate care for their children.
References
Bandura, A. (1997). Self-efficacy: The exercise of control. W. H. Freeman.
Barani, M., Hassani, L., Ghanbarnejad, A., & Molavi, M. A. (2023). Effect of educational intervention based on self-efficacy theory on the caring behaviour of mothers who have children with cancer. Journal of Mother and Child, 27(1), 93-101. https://doi.org/10.34763/jmotherandchild.20232701.d-2200065
Benavidez, O. J., He, W., & Lahoud-Rahme, M. (2019). Readmissions following congenital heart surgery in infants and children. Pediatric Cardiology, 40(5), 994-1000. https://doi.org/10.1007/s00246-019-02104-4
Chaimakham, K., Jintrawet, U., & Klunklin, P. (2022). Factors related to family management among caregivers of children with congenital heart disease after cardiac surgery. Journal of Phrapokklao Nursing College, 33(2), 190-203. (in Thai)
Chaisom, P., Yenbut, J., Chontawan, R., Soivong, P., & Patumanond, J. (2010). Predicting factors of dependent care behaviors among mothers of toddlers with congenital heart disease. Chiang Mai University Journal of Natural Sciences, 9(2), 193-200.
Coban, N., & Ortabag, T. (2022). Home care needs and symptoms of children undergoing heart surgery and quality of life of parents. International Journal of Caring Sciences, 15(1), 109-117.
Eckerstrom, F., Nyboe, C., Maagaard, M., Redington, A., & Hjortdal, V. E. (2023). Survival of patients with congenital ventricular septal defect. European Heart Journal, 44(1), 54-61. https://doi.org/10.1093/eurheartj/ehac618
Ehrler, M., Wettach, C., Beck, I., Buechel, E. R. V., Latal, B., & Landolt, M. A. (2023). Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: A 13-year longitudinal study. Quality of Life Research, 32(10), 2975–2986. https://doi.org/10.1007/s11136-023-03440-y
Elsobky, F. A., Amer, S. A. M., & Sarhan, A. E. M. (2018). The effect of pre-hospital discharge care program on mothers’ knowledge and reported practice for children after congenital heart surgery. Journal of Nursing Education and Practice, 8(9), 122-130. https://doi.org/10.5430/jnep.v8n9p122
Haseba, S., Sakakima, H., Nakao, S., Ohira, M., Yanagi, S., Imoto, Y., Yoshida, A., & Shimodozono, M. (2018). Early postoperative physical therapy for improving short-term gross motor outcome in infants with cyanotic and acyanotic congenital heart disease. Disability and Rehabilitation, 40(14), 1694-1701. https://doi.org/10.1080/09638288.2017.1309582
Hockenberry, M. J., Wilson, D., & Rodgers, C. C. (2021). Wong’s essentials of pediatric nursing (11th ed.). Mosby.
House, J. S. (1981). Work stress and social support. Addison-Wesley.
Intaranarong, K., Klunklin, P., & Namprom, N. (2023). Health literacy and caring for children with congenital heart disease after cardiac surgery of caregivers. The Southern College Network Journal of Nursing and Public Health, 10(1), 182-195. (in Thai)
Jaikla, W., Jintrawet, U., & Niyomkar, S. (2021). Factors related to caregiving among caregivers of children with congenital heart disease after cardiac surgery. Journal of Phrapokklao Nursing College, Chanthaburi, 32(2), 22–36. (in Thai)
Khueanthong, P., Jintrawet, U., & Klunklin, P. (2021). Factors related to caring for children with congenital heart disease after heart surgery among caregivers. Nursing Journal, 48(1), 107-121. (in Thai)
Kogon, B. E., Oster, M. E., Wallace, A., Chiswell, K., Hill, K. D., Cox, M. L., Jacobs, J. P., Pasquali, S., Karamlou, T., & Jacobs, M. L. (2019). Readmission after pediatric cardiothoracic surgery: An analysis of the society of thoracic surgeons database. The Annals of Thoracic Surgery, 107(6), 1816-1823. https://doi.org/10.1016/j.athoracsur.2019.01.009
Lee, B. R., & Koo, H. Y. (2020). Needs for post-hospital education among parents of infants and toddlers with congenital heart disease. Child Health Nursing Research, 26(1), 107-120. https://doi.org/10.4094/chnr.2020.26.1.107
Liu, Y., Chen, S., Zühlke, L., Black, G. C., Choy, M. K., Li, N., & Keavney, B. D. (2019). Global birth prevalence of congenital heart defects 1970–2017: Updated systematic review and meta-analysis of 260 studies. International Journal of Eepidemiology, 48(2), 455-463. https://doi.org/10.1093/ije/dyz009
Marín-Cruz, I., Pedrero-Tomé, R., Toral, B., Flores, M., Orellana-Miguel, M. Á., Boni, L., Belda-Hofheinz, S., Prieto-Tato, L. M., Fernández-Cooke, E., Epalza, C., López-Medrano, F., Rojo, P., & Blázquez-Gamero, D. (2024). Infective endocarditis in pediatric patients: A decade of insights from a leading Spanish heart surgery reference center. European Journal of Pediatrics, 183(9), 3905-3913. https://doi.org/10.1007/s00431-02405606-3
Murni, I. K., Wirawan, M. T., Patmasari, L., Sativa, E. R., Arafuri, N., & Nugroho, S. (2021). Delayed diagnosis in children with congenital heart disease: A mixed-method study. BMC Pediatrics, 21(1), 191. https://doi.org/10.1186/s12887-021-02667-3
Ni, Z. H., Lv, H. T., Ding, S., & Yao, W. Y. (2019). Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study. PLOS ONE, 14(3), e0213154. https://doi.org/10.1371/journal.pone.0213154
Orem, D. E. (2001). Nursing: Concepts of practice (6th ed.). Mosby Yearbook.
Payjapoh, C., Kongsaktrakul, C., & Vallibhakara, S. (2017). Predicting factors of care behaviors among caregivers of newborns up to 5 years old after open heart surgery. Journal of Nursing Science & Health, 40(4), 134-141. (in Thai)
Payomhom, C., Seeda, R., & Wichiencharoen, K. (2013). The effect of educational program on maternal care for children with congenital heart disease undergone post open-heart surgery. Thai Journal of Cardio-Thoracic Nursing, 24(1), 31-43. (in Thai)
Petruentong, P., Srichantaranit, A., & Prasopkittikun, T. (2018). Growth and development in children with congenital heart disease. Songklanagarind Journal of Nursing, 38(1), 10-21. (in Thai)
Pinheiro, J. A. M., de Paula Pessoa, V. L. M., Machado, M. M. T., Moreira, T. M. M., & Salles, D. L. (2017). Experiences of mothers of children with congenital heart disease. International Archives of Medicine, 10(131), 1-5. https://doi.org/10.3823/2401
Polit, D. F., & Beck, C. T. (2021). Nursing research: Generating and assessing evidence for nursing practice (11th ed.). Wolters Kluwer.
Renbarger, K. M., Place, J. M., & Schreiner, M. (2021). The influence of four constructs of social support on pregnancy experiences in group prenatal care. Women’s Health Reports, 2(1), 154-162. https://doi.org/10.1089/whr.2020.0113
S.G.M.L, M., Klunklin, P., & Jintrawet, U. (2022). Social support, self-efficacy, and care practices among parents of children with congenital heart disease, the democratic socialist republic of Sri Lanka. Nursing Journal CMU, 49(2), 29-40. (in Thai)
Shoeb, M. A. A. E., El-Midany, A. A. E., Ibrahiem, W. I. K., & Atiea, W. A. A. A. E. (2021). Deep wound infection in pediatrics after open cardiac surgery. QJM: An International Journal of Medicine, 114(Suppl 1), hcab089.009. https://doi.org/10.1093/qjmed/hcab089.009
Srichantaranit, A., & Thampanichawat, W. (2018). Mothers’ experience of having their children undergoing cardiac surgery: A qualitative study. Thai Journal of Nursing Council, 33(1), 74-88. (in Thai)
The Society of Thoracic Surgeons of Thailand. (2023). Cardiac surgery statistics in Thailand 2023. https://www.thaists.or.th/download-category/statistics-on-heart-surgery-in-thailand/ (in Thai)
Vantum, C., & Soomlek, S. (2012). Health promotion of caregivers in children with congenital heart disease undergone heart surgery. Journal of Nursing Science & Health, 35(1), 1-9. (in Thai)
Wattana, S., Jintrawet, U., & Lamchang, S. (2022). Factors related to family management in families having children with congenital heart disease. Nursing Journal CMU, 49(2), 153-166. (in Thai)
Wu, X., Li, Q., & Chen, J. (2015). Discharge planning for children with ventricular septal defect and pulmonary arterial hypertension in China. International Journal of Nursing Sciences, 2(2), 167-172. https://doi.org/10.1016/j.ijnss.2015.04.011
Yotsai, B., Jintrawet, U., & Sripusanapan, A. (2021). Factors related to promoting post operative physical activities in children with congenital heart disease among caregivers. Nursing Journal, 48(1), 92-106. (in Thai)
Yuan, Y., Pan, B., Liang, X., Lv, T., & Tian, J. (2022). Health-related quality of life in children with congenital heart disease following interventional closure versus minimally invasive closure. Frontiers in Cardiovascular Medicine, 9, 974720. https://doi.org/10.3389/fcvm.2022.974720
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