Outcomes on health status, health-related quality of life and satisfaction among patients with interstitial lung disease received continuity of care
Keywords:
continuity of care, interstitial lung disease, health status, health-related quality of life, satisfactionAbstract
This descriptive study aimed to examine the outcomes of continuity of care in patients with interstitial lung disease (ILD), including health status, health-related quality of life (HRQOL), and satisfaction. The sample consists of 1) One hundred and four medical records of ILD patients who received continuity of care at Interstitial Lung Disease Clinic, Central Chest Institute of Thailand for 1 year with follow-up of health status and HRQOL for three times: at the first visit, 6 months, and 12 months, and 2) Sixty ILD patients who received continuity of care for at least 1 year. The instruments used for data collection included 1) personal data recording form, 2) medical data recording form, included health status: dyspnea (mMRC), pulmonary function (FVC% predicted, DLCO% predicted), functional ability (6MWD), HRQOL (EQ-5D-5L and EQ-VAS), and 3) satisfaction questionnaire. Data were analyzed using descriptive statistics, Friedman’s rank test, and Repeated measures ANOVA.
The results revealed that all 3 times, patients mostly had dyspnea in level 1. Three follow-ups over one year showed that patients' mMRC and FVC% predicted were not different (p >.05), but DLCO% predicted decreased significantly (p <.001). 6MWD and EQ-5D-5L at 6 and 12 months were significantly higher than the first visit (p <.001), whereas EQ-VAS scores were not different (p >.05). 86.7% of the patients were satisfied with the continuity of care at a high level. The results of this study can be used as information to improve the quality of continuous care and increase satisfaction in ILD patients.
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