Health Perception and Health Problems of Children with Congenital Craniofacial Anomalies
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Abstract
BACKGROUND: Congenital craniofacial anomalies have a significant impact on children and their families. The severity of these deformities depends on the nature of disease and leads to differences in health perception and health problems for pediatric patients.
OBJECTIVES: To explore health perception and health problems in children with congenital craniofacial anomalies.
METHODS: In this descriptive research, purposive sampling was used to recruit 121 children aged 7 - 18 years old with craniofacial anomalies who received healthcare services at the Princess Sirindhorn Craniofacial Center, King Chulalongkorn Memorial Hospital, Thai Red Cross Society from October 2018 to September 2020. Interviewing was used to collect personal information, health perception and health problems. Medical records were used to collect patient history and treatment. Data were analyzed using descriptive statistics.
RESULTS: Children had an overall score between 20 and 63 ( X = 33.3, SD = 9.4) for health perception and health problems. The majority of the children (80.2 %) had low level for health perception and health problems. When considering each aspect, we also found low level of health perception and health problems in all aspects in most children. The physical aspect scored between 5 and 15 ( X = 8.1, SD = 2.4), whereas the psychological and emotional aspect scored between 7 and 23 ( X = 13.0, SD = 4.4). The developmental and learning aspect scored between 4 and 16 ( X = 6.9, SD = 2.9), whereas the daily activities aspect scored between 4 and 14 ( X = 5.33, SD = 2.1). Although children’s perception toward both overall and each aspect of health perception and health problems were low, nearly one - third of the children (31.4 %) perceived a moderate level of psychological and emotional aspect.
CONCLUSIONS: Healthcare personnel should provide additional psychological and emotional support for children with congenital craniofacial anomalies in order to enhance child development, develop strong mental health, increase self - acceptance, instill a sense of pride, and adapt to the society in a better fashion.
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References
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