Needs and Preparedness for Caregivers to care for Medical Critically-Ill Patients: A Mixed-Method Study
Keywords:
caregiver need, caregiver preparedness, medical critically-ill patient, mixed-method studyAbstract
This mixed-method study was conducted employing Timing It Right (TIR) as its conceptual framework. It aimed to study 1) the level and types of caregiver needs, and 2) the level of preparedness, barriers, and supporting factors promoting the preparedness of caregivers in caring for medical critically-ill patients. Seventy participants who met the inclusion criteria were enrolled in the study. Data collection involved questionnaires inquiring about the caregivers’ personal information, needs, and preparedness, as well as interviews with open-ended questions. Descriptive statistical and content analyses using Schreier’s method were used to scrutinize and interpret the data and to describe the phenomena related to needs and preparedness of caregivers to medical critically-ill patients
The findings revealed that the needs of caregivers to medical critically-ill patients were at a moderate level (average score 3.57) (S.D .49), and the dimension of needs regarding confidence and the reduction of anxiety had the highest scores (3.99) (S.D .12). In addition, the caregivers needed to know about the symptoms and treatment of patients, chance of patient death, and receipt of financial assistance from hospitals to support the cost of care. The preparedness of caregivers to care for medical critically-ill patients was also at a moderate level (average score 2.91) (S.D .64); the dimension of preparedness to make caregiving activities pleasant for both the caregiver and the patient exhibited the highest score (3.07) (S.D .76). Barriers to caregiving included lack of time to take full care due to work, and lacking confidence about how to prepare to be a caregiver. Meanwhile, the feeling of duty, the love for and attachment to patients, and receipt of instruction on how to provide care were supporting factors for caregiving preparedness.
The results of this study highlight the needs and levels of preparedness of caregivers to medical critically-ill patients. Further research is recommended to develop programs aimed at responding to the needs and promoting preparedness of caregivers to medical critically-ill patients.
References
2. Herridge MS, Moss M, Hough CL, Hopkins RO, Rice TW, Bienvenu OJ, et al. Recovery and outcomes after the acute respiratory distress syndrome (ARDS) in patients and their family caregivers. Intensive Care Med 2016;42(5):725-38.
3. Davidson JE, Aslakson RA, Long AC, Puntillo KA, Kross EK, Hart J, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med 2017;45(1):103-28.
4. Molter NC. Needs of relatives of critically ill patients: a descriptive study. Heart Lung 1979;8:332-39.
5. Leske JS. Interventions to decrease family anxiety. Crit Care Nurs 2002;22(6):61-5.
6. Archbold PG, Stewart BJ, Greenlick MR, Harvath T. Mutuality and preparedness as predictors of caregiver role strain. Res Nurs Health 1990;13(6):375-84.
7. Brown SM, Rozenblum R, Aboumatar H, Fagan MB, Milic M, Lee BS, et al. Defining patient and family engagement in the intensive care unit. Am J Respir Crit Care Med 2015;191(3):358-60.
8. Davidson JE, Harvey MA. Patient and family post-Intensive care syndrome. AACN Adv Crit Care 2016;27(2):184-6.
9. Czerwonka AI, Herridge MS, Chan L, Chu LM, Matte A, Cameron JI. Changing support needs of survivors of complex critical illness and their family caregivers across the care continuum: a qualitative pilot study of towards recover. J Crit Care 2015;30(2):242-9.
10. Chutitada C, Graisopa S, Wongsudta R. Need of critically ill patient's families. KKU Research Journal 1999;4(1):51-8. (in Thai)
11. Vichittragoonthavon S, Imsa-njuan K, Sucamvang K. Needs and received need responses among elderly patients and families in surgical intensive care unit, Maharaj Nakorn Chiang Mai Hospital. Nursing Journal 2013;40:35-46. (in Thai)
12. Srisupha-olarn I, Ua-Kit N. The effect of meeting family-needs program on anxiety of family members of critically ill patients. Songklanagarind Journal of Nursing 2016;36(3):77-93. (in Thai)
13. Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks: SAGE; 2018.
14. Cameron JI, Gignac MA. "Timing It Right": a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns 2008;70(3):305-14.
15. Prescott PA. Multiple regression analysis with small sample: cautions and suggestion. Nurs Res 1987;36(2):130-3.
16. Molter NC, Leske JS. Critical care family needs inventory [Internet]. 1983 [cited 2019 Mar 22] Available from: https://uwm.edu/nursing/wp-content/uploads/sites/287/2015/05/Lesketool.pdf
17. Archbold PJ, Stewart BJ. Fammily cargiving inventory. Portland: Oregon Health Sciences University; 1986.
18. Wirojratana V. Development of the Thai family care inventory [dissertation]. Portland: Oregon Health and Science University; 2002.
19. Schreier M. Qualitative content analysis in practice. London: Sage; 2012.
20. Udchumpisai M. Thriving in family caregiving: a grounded theory study of Thai family caregivers of patients with home mechanical ventilation (HMV) [dissertation]. Songkhla: Prince of Songkla University; 2018.
21. Sasat S, Lertrat P, Choowattanapakorn T. Research report on model of institutional long-term care practice for older persons in Thailand. Nonthaburi: Health systems research institute; 2010. (in Thai).
22. Peek C, Im-em W, Tangthanaseth R. The state of Thailand’s population 2015: features of Thai families in the era of low fertility and longevity. Bangkok: Institute of Population and Social Research, Mahidol University; 2016. (in Thai)
23. Podhisita C. Thai family and household changes: what we don’t know [Internet]. 2012 [cited 2018 Apr 4]. Available from: http://www2.ipsr.mahidol.ac.th/Conference VII/Download/2011-Article-02-pdf (in Thai)
24. van Beusekom I, Bakhshi-Raiez F, de Keizer NF, Dongelmans DA, van der Schaaf M. Reported burden on informal caregivers of ICU survivors: a literature review. Crit Care 2016;20:16.
25. Chuaoupathum R. Nursing care need of caregivers for stroke patients at home [Thesis]. Nakhonpathom: Christian University of Thailand; 2010. (in Thai)
26. Paksee N, Sirapo-ngam Y, Monkong S, Leelacharas S. Effects of a transitional care program for stroke patients and family caregivers on caregiver’s preparedness, stress, adaptation, and satisfaction. Rama Nurs J 2016;22(1):65-80. (in Thai)
27. Menon B, Salini P, Habeeba K, Conjeevaram J, Munisusmitha K. Female caregivers and stroke severity determines caregiver stress in stroke patients. Ann Indian Acad Neurol 2017;20(4):418-24.
28. Haines KJ, Denehy L, Skinner EH, Warrillow S, Berney S. Psychosocial outcomes in informal caregivers of the critically ill: a systematic review. Crit Care Med 2015;43(5):1112-20.
29. Koonnarong O, Thaniwatananont P, Kitrungrote L. Caregiving preparedness, family relationships and role strain among caregivers of Muslim stroke patients. Prince of Naradhivas University Journal 2012;4(1):14-27. (in Thai)
30. Choi J, Lingler JH, Donahoe MP, Happ MB, Hoffman LA, Tate JA. Home discharge following critical illness: a qualitative analysis of family caregiver experience. Heart Lung 2018;47(4):401-7.
31. Hagedoorn EI, Keers JC, Jaarsma T, van der Schans CP, Luttik MLA, Paans W. The association of collaboration between family caregivers and nurses in the hospital and their preparedness for caregiving at home. Geriatr Nurs 2019:S0197-4572(18)30641-4. doi: 10.1016/j.gerinurse.2019.02.004.
Downloads
Published
Issue
Section
License
เนื้อหาบทความหรือข้อคิดเห็นต่างๆ ในวารสารพยาบาลสภากาชาดไทยนี้ เป็นความคิดเห็นของผู้เขียนบทความ ไม่ใช่ความเห็นของกองบรรณาธิการ หรือสถาบันการพยาบาลศรีสวรินทิรา สภากาชาดไทย