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This study aimed to describe roles and needs of caregivers for patients with end of life in a specific setting for palliative care. The participants included 9 primary caregivers both female and male aged over 20 years who took the majority of care for end of life patients before and during palliative care service at Mahavajiralongkorn Thanyaburi Hospital. Data were collected by conducting two focus groups and then performing in-depth interview in 4 individuals by using questionnaire and interview guidelines on roles and needs of caregivers for end of life patients. Data were analyzed using content analysis. The results indicated that there were three major roles of caregiver: 1) direct patient care which included physical, psychological, social, and spiritual; 2) preparation for the end of life care; and 3) role adaptation along with self-care of their own. Caregivers’ needs were composed of four aspects which were: 1) information need about end of life care management; 2) coordination need for accessing to end of life care; 3) helping need for patient care; and 4) financial support need. The findings can be used as information to design guidelines for helping the caregiver for the end of life patients in the specific setting for palliative care.
Keywords: Caregivers, Patients with end of life, Roles, Needs, Palliative care
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บทความ ข้อมูล เนื้อหา รูปภาพ ฯลฯ ที่ได้รับการตีพิมพ์ในรามาธิบดีพยาบาลสาร ถือเป็นลิขสิทธิ์ของวารสาร หากบุคคลหรือหน่วยงานใดต้องการนำทั้งหมดหรือส่วนหนึ่งส่วนใดไปเผยแพร่หรือเพื่อกระทำการใด ใด จะต้องได้รับอนุญาตเป็นลายลักษณ์อักษรจากรามาธิบดีพยาบาลสารก่อนเท่านั้น
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