Roles and Needs of Caregivers for Patients with End of Life in a Specific Setting for Palliative Care

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Ornwitoo Kanchanachari
Yupapin Sirapo-ngam
Supreeda Monkong

Abstract

Abstract:
This study aimed to describe roles and needs of caregivers for patients with end of life in a specific setting for palliative care. The participants included 9 primary caregivers both female and male aged over 20 years who took the majority of care for end of life patients before and during palliative care service at Mahavajiralongkorn Thanyaburi Hospital. Data were collected by conducting two focus groups and then performing in-depth interview in 4 individuals by using questionnaire and interview guidelines on roles and needs of caregivers for end of life patients. Data were analyzed using content analysis. The results indicated that there were three major roles of caregiver: 1) direct patient care which included physical, psychological, social, and spiritual; 2) preparation for the end of life care; and 3) role adaptation along with self-care of their own. Caregivers’ needs were composed of four aspects which were: 1) information need about end of life care management; 2) coordination need for accessing to end of life care; 3) helping need for patient care; and 4) financial support need. The findings can be used as information to design guidelines for helping the caregiver for the end of life patients in the specific setting for palliative care.
Keywords: Caregivers, Patients with end of life, Roles, Needs, Palliative care

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How to Cite
1.
Kanchanachari O, Sirapo-ngam Y, Monkong S. Roles and Needs of Caregivers for Patients with End of Life in a Specific Setting for Palliative Care. Rama Nurs J [Internet]. 2018Feb.19 [cited 2020Feb.21];23(3):328-43. Available from: https://he02.tci-thaijo.org/index.php/RNJ/article/view/91500
Section
บทความวิจัย

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