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This study aimed to describe roles and needs of caregivers for patients with end of life in a specific setting for palliative care. The participants included 9 primary caregivers both female and male aged over 20 years who took the majority of care for end of life patients before and during palliative care service at Mahavajiralongkorn Thanyaburi Hospital. Data were collected by conducting two focus groups and then performing in-depth interview in 4 individuals by using questionnaire and interview guidelines on roles and needs of caregivers for end of life patients. Data were analyzed using content analysis. The results indicated that there were three major roles of caregiver: 1) direct patient care which included physical, psychological, social, and spiritual; 2) preparation for the end of life care; and 3) role adaptation along with self-care of their own. Caregivers’ needs were composed of four aspects which were: 1) information need about end of life care management; 2) coordination need for accessing to end of life care; 3) helping need for patient care; and 4) financial support need. The findings can be used as information to design guidelines for helping the caregiver for the end of life patients in the specific setting for palliative care.
Keywords: Caregivers, Patients with end of life, Roles, Needs, Palliative care
บทความ ข้อมูล เนื้อหา รูปภาพ ฯลฯ ที่ได้รับการตีพิมพ์ในรามาธิบดีพยาบาลสาร ถือเป็นลิขสิทธิ์ของวารสาร หากบุคคลหรือหน่วยงานใดต้องการนำทั้งหมดหรือส่วนหนึ่งส่วนใดไปเผยแพร่หรือเพื่อกระทำการใด ใด จะต้องได้รับอนุญาตเป็นลายลักษณ์อักษรจากรามาธิบดีพยาบาลสารก่อนเท่านั้น
2. Sirapo-ngam Y. Family caregiver’s life for chronic illness patients. Academic conference: caring for the family caregiver of chronic patients. Bangkok: Ramathibodi School of Nursing, Faculty of Medicine Ramathibodi Hospital, Mahidol University; 2012. p.16-20. (in Thai)
3. Davis LL. Building a science of caring for caregivers. FCH. 1992;15(2):1-9.
4. Glajchen M. The emerging role and needs of family caregivers in cancer care. J Support Oncol. 2004; 2(2):145-55.
5. Levitan LL. Oncology pain and symptom management in primary care. In: Buttaro T M, Trybulski J, Polgar-Bailey P, Sandberg-Cook J, editor. Primary care: a collaborative practice. 5th ed. Elsevier Health Sciences; 2016. p.1335-45.
6. Waeteh S, Nilmanal K, Songwathana P. Caregivers’ experience in providing care for muslim patients with terminal AIDS. TJNC. 2009; 24(4):95-109. (in Thai)
7. Hasson F, Kernohan WG, McLaughlin M, Waldron M, McLaughlin D, Chambers H, et al. An exploration into the palliative and end-of-life experiences of carers of people with Parkinson’s disease. Palliat Med. 2010;24(7):731-6.
8. Somanusorn S, Hatthakit U, Nilmanat, K. Caring for a relative at the end of life to die peacefully in the Thai Buddhist culture. The Journal of Faculty of Nursing Burapha University. 2011;19(2):28-41. (in Thai)
9. Jo S, Brazil K, Lohfeld L, Willison K. Caregiving at the end of life: perspectives from spousal caregivers and care recipients. Palliat Support Care. 2007;5(1):11-7.
10. Given BA, Given CW, Sherwood PR. Family and caregiver needs over the course of the cancer trajectory. J Support Oncol. 2012;10(2):57-64.
11. Hasson F, Spence A, Waldron M, Kernohan G, McLaughlin D, Watson B, et al. Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease. J Palliat Med. 2009;25(3):157-63.
12. Mangan PA, Taylor KL, Yabroff KR, Fleming DA, Ingham JM. Caregiving near the end of life: Unmet needs and potential solutions. Palliat Support Care. 2005;1(3):247-59.
13. Wong MS, Chan SWC. The experiences of Chinese family members of terminally ill patients–a qualitative study. J Clin Nurs. 2007;16(12):2357-64.
14. Abernethy A, Burns C, Wheeler J, Currow D. Defining distinct caregiver subpopulations by intensity of end-of-life care provided. Palliat Med. 2009;23(1):66-79.