Caring for Patients with Neuromyelitis Optica Spectrum Disorder Facing Illness Uncertainty: A Case Study ไม่มี
Article Sidebar
Main Article Content
Abstract
Abstract: Uncertainty with illness in patients with Neuromyelitis Optica Spectrum Disorder (NMOSD) affects adaptation, quality of life and coping with changes in daily life, and causes patients to have ambiguity about their illness and inability to predict the duration and prognosis of the disease, compounded by receiving inconsistent information, frequent changes in information, and various factors that influence the uncertainty in this illness. Patients perceive themselves as being in a critical state, having a severe exacerbation of the disease, which may affect their future lives and the ability to perceive changes that occur in the beginning. Furthermore, patients do not fully understand the information provided. Planning and providing various information to help analyze, decision making, and process information are essential. Nurses play an important role in providing information about medical treatment, encouraging patients, building confidence, and allowing patients to express their feelings to reduce anxiety and stress that they are facing and overcome uncertainty during admitted in the intensive care unit.
Downloads
Article Details
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
References
Neurological Institute of Thailand,Clinical Practice Guidelines: Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorder, 1st ed. Bangkok: Tana Press & Graphic Company Limited; 2018. Thai.
Filippi M, Borriello G, Patti F, et al. Perspectives on Neuromyelitis Optica Spectrum Disorders, the Narrative Medicine contribution to care. Neurol Sci. 2024; 45: 1589-97. doi: 10.1007/s10072-023-07146-4.
Esiason DC, Ciesinski N, Nurse CN, et al. The psychological burden of NMOSD–a mixed method study of patients and caregivers. Plos one. 2024; 19(3): e0300777. doi: 10.1371/journal. pone.0300777.
Boursamarrang P, Binhosen V, Pakdevong N. Effectiveness of communication program on uncertainty in illness and coping strategies in family members of critical ill patients. JNHC. 2014; 32(4): 76-84. Thai.
Jaiwongpab S, Soivong P, Sittisombut S, et al. Spiritual health among relatives of critically Ill patients. Nursing Journal CMU. 2017; 44(4): 36-48. Thai.
Sinthurawit P. Effects of stress management program to stress, anxiety and satisfied for relative of critically Ill Patients in the ICU, Wanonniwat Hospital, Sakon Nakhon Province. emh. 2023; 8(2): 72-81. Thai.
Boonyaratkalin P. Communicating with Family of Patients in Intensive Care Unit: Nurse’s Role. TRC Nurs J. 2019; 12(2): 90-9. Thai.
Mishel MH. Methodological studies: Instrument development. Advanced design in nursing research. 1998; 2: 238-84.
Wonglungka J, Sriprasong S, Danaidutsadeekul S, et al. The Effectiveness of the Mobile Application Insight ICU Program on Uncertainty in Illness of Patients’ Families in Intensive Care Units. Nursing Journal CMU [internet]. 2025 Sep. 26 [cited 2025 Oct. 13];52(3):151-63. available from: https://he02.tci-thaijo.org/index.php/cmunursing/article/view/273350
Kusoom W, Krongyuth S. Psychological impacts on patients with critical illness: Management strategies. TJN. 2020; 69(3): 53-61. Thai.
Chaitan C, Techaudomdach C, Somrarnyart M. Factors related to shared decision-making needs regarding treatment of patients’ families in a medical intensive care unit. Nursing Journal CMU. 2024; 51(2): 88-106. Thai.
