Palliative Care for Chronic Renal Failure Patients: Issues and Recommendations for Development

Authors

  • kittikorn Nilmanat faculty of nursing , Prince of Songkla University
  • Samonnan Thasaneesuwan
  • Phenpitcha Tinkaew

Keywords:

chronic renal failure, end-stage, palliative care

Abstract

     A primary goal of palliative care for chronic renal failure patients is to promote their and their families’ quality of life. Such palliative care should cover all the relevant stages, from the diagnosis, to the treatment, to the end-stage care, and to family care after the patient’s death. Major principles of palliative care for chronic renal failure patients consist of 1) identifying the patients in need of palliative care; 2) symptomatic
assessment and management; and 3) mutual decision making and advance care planning.

     Directly responsible for providing palliative care, nurses play a signifcant role in educating and providing information for the patients, giving holistic care to the patients and their families, collaborating with multidisciplinary teams, performing continuous self-development, and upholding the professional ethics. 

     Recommendations for development include integration of palliative care with the early stage of renal diagnosis, development of palliative care teams’ knowledge and skills, improvement of the organisation’s ethical system and mechanisms, and development of research studies that meet accepted standards.

Downloads

Download data is not yet available.

References

Kane PM, Vinen K, Murtagh FE. Palliative care for advanced renal disease: a summary of the evidence and future direction. Palliat Med 2013;27(9):817-21. doi: 10.1177/0269216313491796.

Feely MA, Swetz KM, Zavaleta K, Thorsteinsdottir Br,AlbrightRC,Williams AW.Reengineering dialysis: the role of palliative medicine. J Palliat Med 2016; 19(6):652-5. doi: 10.1089/jpm.2015. 0181.

Eneanya ND, Paasche-Orlow MK, Volandes A. Palliative and end-of-life care in nephrology: moving from observations to interventions.Curr Opin Nephrol Hypertens 2017;26(4):327-34. doi: 10.1097/ MNH.0000000000000337.

Jablonski A. The illness trajectory of end-stage renal disease dialysis patients.Res Theory Nurs Pract 2004; 18(1):51-72.doi:10.1891/rtnp.18.1 .51.28053.

Kilshaw L, Sammut H, Asher R, Williams P, Saxena R, Howse M. A study to describe the health trajectory of

patients with advanced renal disease who choose not to receive dialysis. ClinKidney J 2016;9(3):470-5. doi: 10.1093/ckj/sfw005.

Holley JL. Advance care planning in CKD/ESRD: an evolving process. Clin J Am Soc Nephrol 2012; 7:1033-8. doi: 10.2215/CJN.00580112.

Murtagh FEM,Sheerin NS,Addington-Hall J,Higginson IJ. Trajectories of illness in stage 5 chronic kidney disease: a longitudinal study of patient symptoms and concerns in the last year of life. Clin J Am Soc Nephrol 2011;6:1580-90.doi:10.2215/CJN.09021010.

The Nephrology Society of Thailand.Clinical practice recommendation for comprehensive conservative

care in chronic kidney disease 2017. Bangkok: Tax and Gernal Publication; 2017. (in Thai)

Davison SN, Levin A, Moss AH, Jha V, Brown EA, Brennan F, et al. Executive summary of the KDIGO controversies conference on supportive care in chronic kidney disease: developing a roadmap to improving

quality care. Kidney Int 2015;88(3):447-59. doi: 10.1038/ki.2015.110.

Senanayake S, Gunawardena N, Palihawadana P, BandaraP,HaniffaR,KarunarathnaR,etal.Symptom burden in chronic kidney disease: a population based cross sectional study. BMC Nephrol 2017; 18(1): 228. doi:10.1186/s12882-017-0638-y

Chaiviboontham S, Phinitkhajorndech N, Tiansaard J. Symptom clusters in patients with end-stage renal

disease undergoing hemodialysis. Int J Nephrol Renovasc Dis 2020;13:297-305.

DouglasCA. Palliative care for patients with advanced chronic kidney disease. J R Coll Physicians Edinb 2014;

(3):224-31.doi: 10.4997/JRCPE.2014. 309.

Davison SN. Integrating palliative care for patients with advanced chronic kidney disease: recent advances,

remaining challenges. JPalliatCare2011;27(1):53-61.

Almutary H, Douglas C, Bonner A. Multidimensional symptom clusters: an exploratory factor analysis in

advanced chronic kidney disease. J Adv Nurs 2016; 72(10):2389-400. doi: 10.1111/jan.12997.

Anderson E, Aldous A, Lupu D. Make your wishes about you (MY WAY): Using motivational interviewing to foster advance care planning for patients with chronic kidney disease. Nephrol Nurs J 2018;45(5):411-21.

Punjathumjarern N, Wanchai A, Kaewboonsert D. Treatment decision-making process with continuous

ambulatory peritoneal dialysis of patients with end-stage kidney disease, Phayao Hospital. Journal of Health Science Research 2019;13(2):1-10. (in Thai)

Raghavan D, Holley JL. Conservative care of the elderly CKD patient: a practical guide. Adv Chronic Kidney Dis 2016;23(1):51-6.doi: 10.1053/j.ackd. 2015.08.003. PMID: 26709063.

Lindberg M, Lundström‐Landegren K, Johansson P, Lidén S, Holm U. Competencies for practice in renal

care: a national Delphi study. J Ren Care 2012; 38(2):69-75.doi:10.1111/j.1755-6686.2012. 00260.x.

Lam DY,SchererJS, Brown M,Grubbs V,Schell JO. A conceptual framework of palliative care across the continuum of advanced kidney disease. Clin J Am SocNephrol 2019;14(4):635-41.doi:10.2215/ CJN.09330818.

Yodchai K, Dandecha B. Competency of nurses on the nursing practitioner course in renal replacement

therapy (hemodialysis) Prince of Songkla University. Songklanagarind J Nurs 2018;38(2):60-9. (in Thai)

American Nephrology Nurse Association. Position statement nephrology nurse’s role in palliative and

end-of-life care. Nephrol Nurs J 2018;45(6): 549-51, 613.

Bull R, Youl L, Robertson IK, Mace R, Challenor S, Fassett RG. Pathways to palliative care for patients with chronic kidney disease.J RenCare2014;40(1): 64-73. doi: 10.1111/jorc.12049.

Culp S, Lupu a, Arenella C, Armistead N, Moss AH. Unmetsupportive care needs inU.S.dialysis centers and

lack of knowledge of available resources to address them.JPain Symptom Manage 2016;51(4):756-61. doi: 10.1016/j.jpainsymman.2015.11.017.

Rak A, Raina R, Suh TT, Krishnappa V, Darusz J, SidotiCW,et al.Palliative care for patients with end-stage

renal disease: approach to treatment that aims to improve quality of life and relieve suffering for patients (and

families) with chronic illnesses. Clin Kidney J 2017; 10(1):68-73. doi: 10.1093/ckj/sfw105.

Axelsson L, Benzein E, Lindberg J, Persson C. Endof-life and palliative care of patients on maintenance hemodialysis treatment: a focus group study. BMC Palliat Care 2019;18:89. doi: https://doi.org/10. 1186/ s12904-019-0481-y.

Corbett CM. Effecting palliative care for patients with chronic kidney disease by increasing provider knowledge. Nephrol Nurs J 2018;45(6):525-46. PMID: 30585709.

Gronlund CEF, Soderberg AI, Zingmark KM, SandlundSM, DahlqvistV.Ethically diffcult situations in hemodialysis care – nurses’ narratives. Nurs Ethics 2015; 22(6):711-22.doi: 10.1177/096 97330 14542677.

Koskenvuori J, Numminen O, Suhonen R. Ethical climate in nursing environment: a scoping review. Nurs Ethics 2019;26(3):327-45.

O’Hare AM, Song M-K, Tamura MK, Moss AH. Research priorities for palliative care for older adults with advanced chronic kidney disease. J Palliat Med 2017;20(5):453-60. doi:10.1089/jp

Published

2021-09-23

How to Cite

1.
Nilmanat ก, Thasaneesuwan ศ, Tinkaew เ. Palliative Care for Chronic Renal Failure Patients: Issues and Recommendations for Development. TJNC [Internet]. 2021 Sep. 23 [cited 2022 Aug. 9];36(04):5-16. Available from: https://he02.tci-thaijo.org/index.php/TJONC/article/view/248228

Issue

Section

บทความวิชาการ