Living Well with Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere:

Kamyar Kalantar-Zadeh; Philip  Li; Ekamol Tantisattamo; Latha Kumaraswami; Vassilios Liakopoulos; Siu-Fai Lui; Ifeoma Ulasi; Sharon Andreoli; Alessandro Balducci; Sophie Dupuis; Tess Harris; Anne Hradsky; Richard Knight; Sajay Kumar; Maggie Ng; Alice Poidevin; Gamal Saadi; Allison Tong

doi:10.33192/Smj.2021.28

Authors

Kamyar Kalantar-Zadeh The International Federation of Kidney Foundation – World Kidney Alliance (IFKF-WKA), Division of Nephrology and Hypertension and Kidney Transplantation, University of California Irvine, Orange, California, USA https://orcid.org/0000-0002-8666-0725
Philip Li Department of Medicine and Therapeutics, Carol & Richard Yu PD Research Centre, Prince of Wales Hospital, Chinese University of Hong Kong, Hong Kong, China https://orcid.org/0000-0001-9879-8388
Ekamol Tantisattamo Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, California, United States https://orcid.org/0000-0003-0883-6892
Latha Kumaraswami Tanker Foundation, Chennai, India
Vassilios Liakopoulos Division of Nephrology and Hypertension, 1st Department of Internal Medicine, AHEPA Hospital, Aristotle University of Thessaloniki, Thessaloniki, Greece http://orcid.org/0000-0002-7564-2724
Siu-Fai Lui The Jockey Club School of Public Health and Primary Care, Hong Kong Kidney Foundation, The Chinese University of Hong Kong, China https://orcid.org/0000-0003-0800-8982
Ifeoma Ulasi Renal Unit, Department of Medicine, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria https://orcid.org/0000-0001-7783-3025
Sharon Andreoli James Whitcomb Riley Hospital for Children, Indiana University School of Medicine, Indianapolis, Indiana, USA
Alessandro Balducci Italian Kidney Foundation, Rome, Italy https://orcid.org/0000-0002-7432-1494
Sophie Dupuis World Kidney Day Office, Brussels, Belgium
Tess Harris Polycystic Kidney Disease Charity, London, UK https://orcid.org/0000-0003-3659-7438
Anne Hradsky World Kidney Day Office, Brussels, Belgium
Richard Knight American Association of Kidney Patients, Tampa, Florida, USA
Sajay Kumar Tanker Foundation, Chennai, India
Maggie Ng Hong Kong Kidney Foundation, Hong Kong, China
Alice Poidevin World Kidney Day Office, Brussels, Belgium
Gamal Saadi Cairo University, Nephrology Unit, Department of Internal Medicine, Faculty of Medicine, Giza, Egypt https://orcid.org/0000-0002-6280-1685
Allison Tong Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia https://orcid.org/0000-0001-8973-9538

DOI:

https://doi.org/10.33192/Smj.2021.28

Keywords:

Patient empowerment, care-partner, low-middle-income countries, health policy

Abstract

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policy makers, applicable to both developed and developing countries.

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