Validity And Reliability of The Thai Version of The Family Dermatology Life Quality Index

Authors

  • Kanokvalai Kulthanun Department of Dermatology, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand
  • Papapit Tuchinda Department of Dermatology, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand
  • Chuda Rujitharanawong Department of Dermatology, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand
  • Waratchaya Panjapakkul Department of Dermatology, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand
  • Leena Chularojanamontri Department of Dermatology, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand

DOI:

https://doi.org/10.33192/smj.v75i5.260735

Keywords:

validity, reliability, family dermatology, Quality index

Abstract

Objective: This study aimed to investigate the validity and reliability of the Thai version of FDLQI.

Materials and Methods: Patients and their accompanying family members attending the Dermatology Outpatient Clinic at Siriraj Hospital were asked to complete the Dermatology Life Quality Index (DLQI), FDLQI, and the global question of their QoL (GQoL). The severity of the disease was assessed by physicians, the patients and the family members of the patients.

Results: One hundred family members accompanying 92 patients with dermatological diseases (63% with inflammatory skin diseases and 37% with non-inflammatory skin diseases) were included. The mean age of the family members was 43.5±12.1 years and 70% were women. They had been mostly employed (74%) and graduated from universities (65%). Validity was demonstrated by a positive correlation between FDLQI and GQoL scores (rs=0.695, P<0.001), and between FDLQI and severity of the patient's disease (rs=0.578, P<0.001) as evaluated by family members. The FDLQI showed high internal consistency (Cronbach’s alpha=0.84) and test-retest reliability (ICC= 0.85).

Conclusion: The construct validity, internal consistency, and test-retest reliability of the Thai FDLQI demonstrated acceptable validity and reliability. The Thai version of FDLQI can be used to assess the QoL of family members of patients with any dermatological diseases.

References

Karimkhani C, Dellavalle RP, Coffeng LE, Flohr C, Hay RJ, Langan SM, et al. Global Skin Disease Morbidity and Mortality: An Update From the Global Burden of Disease Study 2013. JAMA Dermatol. 2017;153:406-12.

Montero-Vilchez T, Sánchez-Díaz M, Martinez-Lopez A, Arias-Santiago S. Quality of Life in Patients with Skin Disease and Their Cohabitants. Health-Related Quality of Life - Measurement Tools, Predictors and Modifiers. doi:10.5772/intechopen.97450

Chogani F, Parvizi MM, Murrell DF, Handjani F. Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers. Int J Womens Dermatol. 2021;7:721-6.

Lifschitz C. The impact of atopic dermatitis on quality of life. Ann Nutr Metab. 2015;66 Suppl 1:34-40.

Rees J, O'Boyle C, MacDonagh R. Quality of life: impact of chronic illness on the partner. J R Soc Med. 2001;94:563-6.

Basra MK, Sue-Ho R, Finlay AY. The Family Dermatology Life Quality Index: measuring the secondary impact of skin disease. Br J Dermatol. 2007;156:528-38.

Basra MK, Edmunds O, Salek MS, Finlay AY. Measurement of family impact of skin disease: further validation of the Family Dermatology Life Quality Index (FDLQI). J Eur Acad Dermatol Venereol. 2008;22:813-21.

Higaki Y, Tanaka M, Futei Y, Kamo T, Basra MKA, Finlay AY. Japanese version of the Family Dermatology Life Quality Index: Translation and validation. J Dermatol. 2017;44:914-9.

Safizadeh H, Nakhaee N, Shamsi-Meymandi S, Pourdamghan N, Basra MK. Preliminary reliability and validity of Persian version of the Family Dermatology Life Quality Index (FDLQI). Qual Life Res. 2014;23:869-75.

Chernyshov PV, Kaliuzhna LD, Reznikova AA, Basra MK. Comparison of the impairment of family quality of life assessed by disease-specific and dermatology-specific instruments in children with atopic dermatitis. J Eur Acad Dermatol Venereol. 2015;29:1221-4.

Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI)--a simple practical measure for routine clinical use. Clin Exp Dermatol. 1994;19:210-6.

Kulthana K JS, Wanitphakdeedecha R. The validity and reliability of the dermatology life quality index (DLQI) in Thais. Thai J Dermatol. 2004;20:113-23.

Nunnaly JC, BI. Psychometric theory. 3rd ed: NewYork: Mc Graw-Hill; 1994.

Schmitt N. Uses and Abuses of Coefficient Alpha. Psychological Assessment. 1996;8:350-3.

Gourraud PA, Le Gall C, Puzenat E, Aubin F, Ortonne JP, Paul CF. Why statistics matter: limited inter-rater agreement prevents using the psoriasis area and severity index as a unique determinant of therapeutic decision in psoriasis. J Invest Dermatol. 2012;132:2171-5.

Finlay A. The three dimensions of skin disease burden: 'Now', 'long term' and 'family'. Br J Dermatol. 2013;169:963-4.

Sampogna F, Finlay AY, Salek SS, Chernyshov P, Dalgard FJ, Evers AWM, et al. Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. J Eur Acad Dermatol Venereol. 2017;31:1429-39.

Köse S, Akelma Z, Özmen S. Severity of disease and the quality of life indexes in infants with atopic dermatitis. Allergol Immunopathol (Madr). 2022;50:55-61.

Martínez-García E, Arias-Santiago S, Valenzuela-Salas I, Garrido-Colmenero C, García-Mellado V, Buendía-Eisman A. Quality of life in persons living with psoriasis patients. J Am Acad Dermatol. 2014;71:302-7.

Kim E, Fischer G. Relationship between PASI and FDLQI in paediatric psoriasis, and treatments used in daily clinical practice. Australas J Dermatol. 2021;62:190-4.

Agarwal S, Jain C, Shaafie HI, Khalid A, Singh A. Impact on quality of life of family members of vitiligo patients in North India: A cross-sectional study using family dermatology life quality index. Indian J Dermatol Venereol Leprol. 2021;87:869-72.

Bin Saif GA, Al-Balbeesi AO, Binshabaib R, Alsaad D, Kwatra SG, Alzolibani AA, et al. Quality of life in family members of vitiligo patients: a questionnaire study in Saudi Arabia. Am J Clin Dermatol. 2013;14:489-95.

Kouris A, Christodoulou C, Efstathiou V, Chatzimichail I, Zakopoulou N, Zouridaki E. Quality of life in Greek family members living with leg ulcer patients. Wound Repair Regen. 2015;23:778-80.

Sajedianfard S, Handjani F, Saki N, Heiran A. Family dermatology life quality index in patients with pemphigus vulgaris: A cross-sectional study. Indian J Dermatol Venereol Leprol. 2021;87:375-8.

McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res. 1995;4:293-307.

Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60:34-42.

Wamper KE, Sierevelt IN, Poolman RW, Bhandari M, Haverkamp D. The Harris hip score: Do ceiling effects limit its usefulness in orthopedics? Acta Orthop. 2010;81:703-7.

Uttl B. Measurement of Individual Differences: Lessons From Memory Assessment in Research and Clinical Practice. Psychol Sci. 2005;16(6):460-7.

Raat H, Landgraf JM, Oostenbrink R, Moll HA, Essink-Bot ML. Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Qual Life Res. 2007;16:445-60.

Zhang X-J, Wang A-P, Shi T-Y, Zhang J, Xu H, Wang D-Q, et al. The psychosocial adaptation of patients with skin disease: a scoping review. BMC Public Health. 2019;19:1404.

Ware JE, Jr., Gandek B. Methods for testing data quality, scaling assumptions, and reliability: the IQOLA Project approach. International Quality of Life Assessment. J Clin Epidemiol. 1998;51:945-52.

Yun J, Katelaris CH, Weerasinghe A, Adikari DB, Ratnayake C. Impact of chronic urticaria on the quality of life in Australian and Sri Lankan populations. Asia Pac Allergy. 2011;1:25-9.

Knafl KA, Gilliss CL. Families and Chronic Illness: A Synthesis of Current Research. J Fam Nurs. 2002;8:178-98.

Ariyaarpakamol N. Urban-rural inequality in Thailand: Differences in characteristics or returns? Kasetsart J Soc Sci. 2019;40:32-9.

Hitokoto H, Takahashi Y, Kaewpijit J. Happiness in Thailand: Variation between urban and rural regions. Psychologia. 2014;57:229-44.

Published

01-05-2023

How to Cite

Kulthanun, K., Tuchinda, P., Rujitharanawong, C., Panjapakkul, W., & Chularojanamontri, L. (2023). Validity And Reliability of The Thai Version of The Family Dermatology Life Quality Index . Siriraj Medical Journal, 75(5), 369–376. https://doi.org/10.33192/smj.v75i5.260735

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